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  1. Fostering relational autonomy in end-of-life care: a procedural approach and three-dimensional decision-making model.Kar-Fai Foo, Ya-Ping Lin, Cheng-Pei Lin & Yu-Chun Chen - forthcoming - Journal of Medical Ethics.
    Respect for patient autonomy is paramount in resolving ethical tensions in end-of-life care. The concept of relational autonomy has contributed to this debate; however, scholars often use this concept in a fragmented manner. This leads to partial answers on ascertaining patients’ true wishes, meaningfully engaging patients’ significant others, balancing interests among patients and significant others, and determining clinicians’ obligations to change patients’ unconventional convictions to enhance patient autonomy. A satisfactory solution based on relational autonomy must incorporate patients’ competence (apart from (...)
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  • Autonomy as Ideology: Towards an Autonomy Worthy of Respect.Alistair Wardrope - 2015 - The New Bioethics 21 (1):56-70.
    Recent criticism of the role of respect for autonomy in bioethics has focused on that principle's status as ‘dogma’ or ‘ideology’. I suggest that lying beneath many applications of respect for autonomy in medical ethics are some influential dogmas — propositions accepted, not as explicit premises or as a consequence of reasoned argument, but simply because moral problems are so frequently framed in such terms. Furthermore, I will argue that rejecting these dogmas is vital to secure and protect an autonomy (...)
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  • Relational Autonomy, Paternalism, and Maternalism.Laura Specker Sullivan & Fay Niker - 2018 - Ethical Theory and Moral Practice 21 (3):649-667.
    The concept of paternalism is intricately tied to the concept of autonomy. It is commonly assumed that when paternalistic interventions are wrong, they are wrong because they impede individuals’ autonomy. Our aim in this paper is to show that the recent shift towards conceiving of autonomy relationally highlights a separate conceptual space for a nonpaternalistic kind of interpersonal intervention termed maternalism. We argue that maternalism makes a twofold contribution to the debate over the ethics of interpersonal action and decision-making. Descriptively, (...)
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  • Digital Wellness and Persuasive Technologies.Laura Specker Sullivan & Peter Reiner - 2019 - Philosophy and Technology 34 (3):413-424.
    The development of personal technologies has recently shifted from devices that seek to capture user attention to those that aim to improve user well-being. Digital wellness technologies use the same attractive qualities of other persuasive apps to motivate users towards behaviors that are personally and socially valuable, such as exercise, wealth-management, and meaningful communication. While these aims are certainly an improvement over the market-driven motivations of earlier technologies, they retain their predecessors’ focus on influencing user behavior as a primary metric (...)
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  • Autonomy and Addictive Design.Stephen Scales - 2021 - Ethics in Biology, Engineering and Medicine 12 (1):141-160.
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  • Could robots strengthen the sense of autonomy of older people residing in assisted living facilities?—A future-oriented study.Jari Pirhonen, Helinä Melkas, Arto Laitinen & Satu Pekkarinen - 2020 - Ethics and Information Technology 22 (2):151-162.
    There is an urge to introduce high technology and robotics in care settings. Assisted living is the fastest growing form of older adults’ long-term care. Resident autonomy has become the watchword for good care. This article sheds light on the potential effects of care robotics on the sense of autonomy of older people in AL. Three aspects of the residents’ sense of autonomy are of particular interest: interaction-based sense of autonomy, coping-based sense of autonomy, and potential-based sense of autonomy. Ethnographical (...)
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  • Perceptions of Undue Influence Shed Light on the Folk Conception of Autonomy.Fay Niker, Peter B. Reiner & Gidon Felsen - 2018 - Frontiers in Psychology 9:392196.
    Advances in psychology and neuroscience have elucidated the social aspects of human agency, leading to a broad shift in our thinking about fundamental concepts such as autonomy and responsibility. Here, we address a critical aspect of this inquiry by investigating how people consider the socio-relational nature of their own agency, particularly the influence of others on their perceived control over their decisions and actions. Specifically, in a series of studies using contrastive vignettes, we examine public attitudes about when external influences (...)
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  • Acknowledging vulnerability in ethics of palliative care – A feminist ethics approach.Sofia Morberg Jämterud - 2022 - Nursing Ethics 29 (4):952-961.
    Patients in need of palliative care are often described as vulnerable. Being vulnerable can sometimes be interpreted as the opposite of being autonomous, if an autonomous person is seen as an independent, self-sufficient person who forms decisions independently of others. Such a dichotomous view can create a situation where one has experiences of vulnerability that cannot be reconciled with the central ethical principle of autonomy. The article presents a feminist ethical perspective on the conceptualisation of vulnerability in the context of (...)
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  • Choosing to Live with Harm? A Presentation of two Case Studies to Explore the Perspective of those who Experienced Adult Safeguarding Interventions.Kathryn Mackay - 2017 - Ethics and Social Welfare 11 (1):33-46.
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  • Where Do You End, and I Begin? How Relationships Confound Advance Directives in the Care of Persons Living with Dementia.David M. Lyreskog, Jason Karlawish & Saskia K. Nagel - 2020 - American Journal of Bioethics 20 (8):83-85.
    Volume 20, Issue 8, August 2020, Page 83-85.
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  • Agency in Social Context.John Lawless - 2017 - Res Philosophica 94 (4):471-498.
    Many political philosophers argue that interference (or vulnerability to interference) threatens a person’s agency. And they cast political freedom in opposition to interpersonal threats to agency, as non-interference (or non-subjection). I argue that this approach relies on an inapt model of agency, crucial aspects of which emerge from our relationships with other people. Such relationships involve complex patterns of vulnerability and subjection, essential to our constitution as particular kinds of agents: as owners of property, as members of families, and as (...)
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  • Disability, Paternalism, and Autonomy: Rethinking Political Decision-Making and Speech.Amber Knight - 2016 - Res Philosophica 93 (4):865-891.
    Given that many people with disabilities have been excluded from political deliberation and subjected to infantilizing and degrading treatment from others, many members of the disability rights movement are understandably critical of policies and practices that speak on behalf of people with disabilities and presume to know what is really in their best interest. Yet, this analysis argues that a general principle of anti-paternalism is not desirable for disability politics. In particular, people with cognitive disabilities are sometimes unable to make (...)
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  • Fostering the therapeutic alliance: Recognizing autonomy’s dialogical antecedents.Maurice Kinsella - 2019 - Philosophical Psychology 32 (3):332-356.
    This paper presents a reconceptualization of autonomy as the iterative realization of one’s capacity for “effective self-definition,” that is, possessing a sense of clarity and coherence in “who I am,” and exercising the decisional and volitional ownership over my life that this engenders. This process is “Relational,” wherein people’s interpersonal interactions have a deep and pervasive influence on their ability to recognize and exercise their autonomous capacities. This Relational understanding of autonomy is contextualized within the field of addiction rehabilitative practice. (...)
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  • Living Will Versus Will to Live? How to Navigate Through Complex Decisions for Persons With Dementia.Ralf J. Jox - 2020 - American Journal of Bioethics 20 (8):85-87.
    Volume 20, Issue 8, August 2020, Page 85-87.
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  • Every Vote Counts: Equality, Autonomy, and the Moral Value of Democratic Decision-Making.Daniel Jacob - 2015 - Res Publica 21 (1):61-75.
    What is the moral value of formal democratic decision-making? Egalitarian accounts of democracy provide a powerful answer to this question. They present formal democratic procedures as a way for a society of equals to arrive at collective decisions in a transparent and mutually acceptable manner. More specifically, such procedures ensure and publicly affirm that all members of a political community, in their capacity as autonomous actors, are treated as equals who are able and have a right to participate in collective (...)
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  • Relational autonomy in the care of the vulnerable: health care professionals’ reasoning in Moral Case Deliberation.Kaja Heidenreich, Anders Bremer, Lars Johan Materstvedt, Ulf Tidefelt & Mia Svantesson - 2018 - Medicine, Health Care and Philosophy 21 (4):467-477.
    In Moral Case Deliberation, healthcare professionals discuss ethically difficult patient situations in their daily practice. There is a lack of knowledge regarding the content of MCD and there is a need to shed light on this ethical reflection in the midst of clinical practice. Thus, the aim of the study was to describe the content of healthcare professionals’ moral reasoning during MCD. The design was qualitative and descriptive, and data consisted of 22 audio-recorded inter-professional MCDs, analysed with content analysis. The (...)
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  • Vulnerability and Autonomy – Children and Adults.Johannes Giesinger - 2019 - Ethics and Social Welfare 13 (3):216-229.
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  • Older patients’ autonomy when cared for at emergency departments.Catharina Frank, Mats Holmberg, Elin Ekestubbe Jernby, Annika Sevandersson Hansen & Anders Bremer - 2022 - Nursing Ethics 29 (5):1266-1279.
    Background Older patients in emergency care often have complex needs and may have limited ability to make their voices heard. Hence, there are ethical challenges for healthcare professionals in establishing a trustful relationship to determine the patient’s preferences and then decide and act based on these preferences. With this comes further challenges regarding how the patient’s autonomy can be protected and promoted. Aim To describe nurses’ experiences of dealing with older patients’ autonomy when cared for in emergency departments (EDs). Research (...)
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  • Ethics of Reproductive Genetic Carrier Screening: From the Clinic to the Population.Lisa Dive & Ainsley J. Newson - 2021 - Public Health Ethics 14 (2):202-217.
    Reproductive genetic carrier screening is increasingly being offered more widely, including to people with no family history or otherwise elevated chance of having a baby with a genetic condition. There are valid reasons to reject a prevention-focused public health ethics approach to such screening programs. Rejecting the prevention paradigm in this context has led to an emphasis on more individually-focused values of freedom of choice and fostering reproductive autonomy in RCS. We argue, however, that population-wide RCS has sufficient features in (...)
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  • Paternalism and our Rational Powers.Michael Cholbi - 2017 - Mind 126 (501):123-153.
    According to rational will views of paternalism, the wrongmaking feature of paternalism is that paternalists disregard or fail to respect the rational will of the paternalized, in effect substituting their own presumably superior judgments about what ends the paternalized ought to pursue or how they ought to pursue them. Here I defend a version of the rational will view appealing to three rational powers that constitute rational agency, which I call recognition, discrimination, and satisfaction. By appealing to these powers, my (...)
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  • The Porosity of Autonomy: Social and Biological Constitution of the Patient in Biomedicine.Jonathan Beever & Nicolae Morar - 2016 - American Journal of Bioethics 16 (2):34-45.
    The nature and role of the patient in biomedicine comprise issues central to bioethical inquiry. Given its developmental history grounded firmly in a backlash against 20th-century cases of egregious human subjects abuse, contemporary medical bioethics has come to rely on a fundamental assumption: the unit of care is the autonomous self-directing patient. In this article we examine first the structure of the feminist social critique of autonomy. Then we show that a parallel argument can be made against relational autonomy as (...)
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