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  1. Towards Responsible, Lawful and Ethical Data Processing: Patient Data in the UK.Tess Johnson, Konrad Kollnig & Pierre Dewitte - 2022 - Internet Policy Review 1 (11).
    In May 2021, the UK National Health Service (NHS) proposed a scheme—called General Practice Data for Planning Research (GPDPR)—for sharing patients’ data. Under that system, a patient who does not wish to participate must actively opt out of their data being shared with third parties for research and other purposes. In this paper, we analyse the lessons that can be learned for the responsible and ethical governance of health data from the NHS’ new scheme. More specifically, we explore the extent (...)
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