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Respect for persons, informed consent andthe assessment of infectious disease risks in xenotransplantation

Jeffrey H. Barker & Lauren Polcrack

Medicine, Health Care and Philosophy 4 (1):53-70 (2001)

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Genetic information, rights, and autonomy.Matti Häyry & Tuija Takala - 2001 - Theoretical Medicine and Bioethics 22 (5):403-414.details Rights, autonomy, privacy, and confidentialityare concepts commonly used in discussionsconcerning genetic information. When theseconcepts are thought of as denoting absolutenorms and values which cannot be overriden byother considerations, conflicts among themnaturally occur.In this paper, these and related notions areexamined in terms of the duties and obligationsmedical professionals and their clients canhave regarding genetic knowledge. It issuggested that while the prevailing idea ofautonomy is unhelpful in the analysis of theseduties, and the ensuing rights, an alternativereading of personal self-determination canprovide a firmer (...) Download Export citation Bookmark 16 citations
COVID-19 controlled human infection studies: worries about local community impact and demands for local engagement.Kyungdo Lee & Nir Eyal - 2021 - Journal of Medical Ethics 47 (8):539-542.details In spring, summer and autumn 2020, one abiding argument against controlled human infection studies of SARS-CoV-2 vaccines has been their impact on local communities. Leading scientists and bioethicists expressed concern about undue usage of local residents’ direly needed scarce resources at a time of great need and even about their unintended infection. They recommended either avoiding CHI trials or engaging local communities before conducting any CHIs. Similar recommendations were not made for the alternative—standard phase III field trials of these same (...) Download Export citation Bookmark 4 citations
First-of-its-kind Xenotransplantation: Bedarf an ethischer Reflexion in Wissenschaft und Gesellschaft.Johannes Kögel & Georg Marckmann - 2023 - Ethik in der Medizin 35 (1):137-143.details Download Export citation Bookmark 1 citation
What does it take to consent to islet cell xenotransplantation?: Insights from an interview study with type 1 diabetes patients and review of the literature.Georg Marckmann, Jochen Seissler, Barbara Ludwig, Sandra Thiersch & Johannes Kögel - 2021 - BMC Medical Ethics 22 (1):1-11.details BackgroundThe transplantation of porcine islet cells provides a new potential therapy to treat patients with type 1 diabetes mellitus (T1DM). Compared to other biomedical technologies, xenotransplantation stands out in terms of its involvement of animals as graft sources, as well as the possible transmission of infectious diseases. As these aspects are especially relevant for potential xenotransplantation recipients, it is important to assess their opinion regarding this technology, in particular in terms of the requirements that should be met in the informed (...) Download Export citation Bookmark
Collective informed consent and decision power.Jukka Varelius - 2009 - Science and Engineering Ethics 15 (1):39-50.details It has been suggested that, in addition to individual level decision-making, informed consent procedures could be used in collective decision-making too. One of the main criticisms directed at this suggestion concerns decision-making power. It is maintained that consent is a veto power concept and that, as such, it is not appropriate for collective decision-making. This paper examines this objection to collective informed consent. It argues that veto power informed consent can have some uses in the collective level and that when (...) Download Export citation Bookmark 1 citation

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