- The practical ethics of repurposing health data: how to acknowledge invisible data work and the need for prioritization.Sara Green, Line Hillersdal, Jette Holt, Klaus Hoeyer & Sarah Wadmann - 2023 - Medicine, Health Care and Philosophy 26 (1):119-132.details
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Thinking about the idea of consent in data science genomics: How ‘informed’ is it?Jennifer Greenwood & Andrew Crowden - 2021 - Nursing Philosophy 22 (3):e12347.details
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Communicable Disease Surveillance Ethics in the Age of Big Data and New Technology.Gwendolyn L. Gilbert, Chris Degeling & Jane Johnson - 2019 - Asian Bioethics Review 11 (2):173-187.details
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Big Data Analytics, Infectious Diseases and Associated Ethical Impacts.Chiara Garattini, Jade Raffle, Dewi N. Aisyah, Felicity Sartain & Zisis Kozlakidis - 2019 - Philosophy and Technology 32 (1):69-85.details
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What Is the Good of It—Ethical Controls of Human Subject Health Research?: Curtin University Annual Ethics Lecture.Robert French - 2018 - Journal of Bioethical Inquiry 15 (4):589-602.details
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“Data makes the story come to life:” understanding the ethical and legal implications of Big Data research involving ethnic minority healthcare workers in the United Kingdom—a qualitative study.Robert Free, David Ford, Kamlesh Khunti, Sue Carr, Louise Wain, Martin D. Tobin, Keith R. Abrams, Amit Gupta, Ibrahim Abubakar, Katherine Woolf, I. Chris McManus, Catherine Johns, Anna L. Guyatt, Laura B. Nellums, Laura Gray, Manish Pareek, Ruby Reed-Berendt & Edward S. Dove - 2022 - BMC Medical Ethics 23 (1):1-14.details
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Negotiating the reuse of health-data: Research, Big Data, and the European General Data Protection Regulation.Ulrike Felt & Johannes Starkbaum - 2019 - Big Data and Society 6 (2).details
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An African Relational Approach to Healthcare and Big Data Challenges.Cornelius Ewuoso - 2021 - Science and Engineering Ethics 27 (3):1-18.details
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A qualitative study of big data and the opioid epidemic: recommendations for data governance.Elizabeth A. Evans, Elizabeth Delorme, Karl Cyr & Daniel M. Goldstein - 2020 - BMC Medical Ethics 21 (1):1-13.details
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It is not a big deal: a qualitative study of clinical biobank donation experience and motives.Ksenia Eritsyan & Natalia Antonova - 2022 - BMC Medical Ethics 23 (1):1-11.details
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Conceptualizations of Big Data and their epistemological claims in healthcare: A discourse analysis.Antoinette de Bont, Rik Wehrens & Marthe Stevens - 2018 - Big Data and Society 5 (2).details
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The Threat of Algocracy: Reality, Resistance and Accommodation.John Danaher - 2016 - Philosophy and Technology 29 (3):245-268.details
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Gender Transition: Is There a Right to Be Forgotten?Mónica Correia, Guilhermina Rêgo & Rui Nunes - 2021 - Health Care Analysis 29 (4):283-300.details
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Ethics of using artificial intelligence (AI) in veterinary medicine.Simon Coghlan & Thomas Quinn - 2023 - AI and Society:1-12.details
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Epistemic Rights and Responsibilities of Digital Simulacra for Biomedicine.Mildred K. Cho & Nicole Martinez-Martin - 2022 - American Journal of Bioethics 23 (9):43-54.details
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The Fate of Explanatory Reasoning in the Age of Big Data.Frank Cabrera - 2021 - Philosophy and Technology 34 (4):645-665.details
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Advancing a Data Justice Framework for Public Health Surveillance.Mara Buchbinder, Eric Juengst, Stuart Rennie, Colleen Blue & David L. Rosen - 2022 - AJOB Empirical Bioethics 13 (3):205-213.details
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Motives of contributing personal data for health research: (non-)participation in a Dutch biobank.R. Broekstra, E. L. M. Maeckelberghe, J. L. Aris-Meijer, R. P. Stolk & S. Otten - 2020 - BMC Medical Ethics 21 (1):1-11.details
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Synergies in Innovation: Lessons Learnt from Innovation Ethics for Responsible Innovation.Michel Bourban & Johan Rochel - 2020 - Philosophy and Technology 34 (2):373-394.details
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Understanding and Managing Responsible Innovation.Hans Bennink - 2020 - Philosophy of Management 19 (3):317-348.details
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Willingness to Share yet Maintain Influence: A Cross-Sectional Study on Attitudes in Sweden to the Use of Electronic Health Data.Sara Belfrage, Niels Lynöe & Gert Helgesson - 2021 - Public Health Ethics 14 (1):23-34.details
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Negotiating Authenticity in Technological Environments.Siri Beerends & Ciano Aydin - 2021 - Philosophy and Technology 34 (4):1665-1685.details
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A Code of Digital Ethics: laying the foundation for digital ethics in a science and technology company.Sarah J. Becker, André T. Nemat, Simon Lucas, René M. Heinitz, Manfred Klevesath & Jean Enno Charton - 2023 - AI and Society 38 (6):2629-2639.details
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How should we think about clinical data ownership?Angela Ballantyne - 2020 - Journal of Medical Ethics 46 (5):289-294.details
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Consent and the ethical duty to participate in health data research.Angela Ballantyne & G. Owen Schaefer - 2018 - Journal of Medical Ethics 44 (6):392-396.details
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Towards trust-based governance of health data research.Marieke A. R. Bak, M. Corrette Ploem, Hanno L. Tan, M. T. Blom & Dick L. Willems - 2023 - Medicine, Health Care and Philosophy 26 (2):185-200.details
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Contextual Exceptionalism After Death: An Information Ethics Approach to Post-Mortem Privacy in Health Data Research.Marieke A. R. Bak & Dick L. Willems - 2022 - Science and Engineering Ethics 28 (4):1-20.details
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AI, big data, and the future of consent.Adam J. Andreotta, Nin Kirkham & Marco Rizzi - 2022 - AI and Society 37 (4):1715-1728.details
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The Influence of Business Incentives and Attitudes on Ethics Discourse in the Information Technology Industry.Sanju Ahuja & Jyoti Kumar - 2021 - Philosophy and Technology 34 (4):941-966.details
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Proyecto genoma humano veinte años después: el pangenoma humano.Gilberto A. Gamboa-Bernal - 2023 - Persona y Bioética.details
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The ethics of algorithms: mapping the debate.Brent Mittelstadt, Patrick Allo, Mariarosaria Taddeo, Sandra Wachter & Luciano Floridi - 2016 - Big Data and Society 3 (2).details
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The Future of Value Sensitive Design.Batya Friedman, David Hendry, Steven Umbrello, Jeroen Van Den Hoven & Daisy Yoo - 2020 - Paradigm Shifts in ICT Ethics: Proceedings of the 18th International Conference ETHICOMP 2020.details
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Designing the Health-related Internet of Things: Ethical Principles and Guidelines.Brent Mittelstadt - 2017 - Information 8 (3):77.details
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What is data ethics?Luciano Floridi & Mariarosaria Taddeo - 2016 - Philosophical Transactions of the Royal Society A 374 (2083).details
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