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  1. Why Bioethics Needs a Disability Moral Psychology.Joseph A. Stramondo - 2016 - Hastings Center Report 46 (3):22-30.
    The deeply entrenched, sometimes heated conflict between the disability movement and the profession of bioethics is well known and well documented. Critiques of prenatal diagnosis and selective abortion are probably the most salient and most sophisticated of disability studies scholars’ engagements with bioethics, but there are many other topics over which disability activists and scholars have encountered the field of bioethics in an adversarial way, including health care rationing, growth-attenuation interventions, assisted reproduction technology, and physician-assisted suicide. The tension between the (...)
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  • Progress in medicine: autonomy, oughtonomy and nudging.Ignaas Devisch - 2011 - Journal of Evaluation in Clinical Practice 17 (5):857-861.
    Rationale: In this article, I argue that we need a new perspective in the debate on autonomy in medicine, to understand many of the problems we face today – dilemmas that are situated at the intersection of autonomy and heteronomy, such as why well informed and autonomous people make unhealthy lifestyle choices. If people do not choose what they want, this is not simply caused by their lack of character or capability, but also by the fact that absolute autonomy is (...)
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  • Is Human Enhancement also a Personal Matter?Vincent Menuz, Thierry Hurlimann & Béatrice Godard - 2013 - Science and Engineering Ethics 19 (1):161-177.
    Emerging technologies are increasingly used in an attempt to “enhance the human body and/or mind” beyond the contemporary standards that characterize human beings. Yet, such standards are deeply controversial and it is not an easy task to determine whether the application of a given technology to an individual and its outcome can be defined as a human enhancement or not. Despite much debate on its potential or actual ethical and social impacts, human enhancement is not subject to any consensual definition. (...)
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  • Choosing death in unjust conditions: hope, autonomy and harm reduction.Kayla Wiebe & Amy Mullin - 2024 - Journal of Medical Ethics 50 (6):407-412.
    In this essay, we consider questions arising from cases in which people request medical assistance in dying (MAiD) in unjust social circumstances. We develop our argument by asking two questions. First, can decisions made in the context of unjust social circumstance be meaningfully autonomous? We understand ‘unjust social circumstances’ to be circumstances in which people do not have meaningful access to the range of options to which they are entitled and ‘autonomy’ as self-governance in the service of personally meaningful goals, (...)
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  • Identifying the Presence of Ethics Concepts in Chronic Pain Research: A Scoping Review of Neuroscience Journals.Rajita Sharma, Samuel A. Dale, Sapna Wadhawan, Melanie Anderson & Daniel Z. Buchman - 2022 - Neuroethics 15 (2):1-17.
    Background Chronic pain is a pervasive and invisible condition which affects people in a myriad of ways including but not limited to their quality of life, autonomy, mental and physical health, social mobility, and productivity. There are many ethical implications of neuroscience research on chronic pain, given its potential to reduce suffering and improve the lived experience of people in pain. While a growing body of research studies the etiology, neurophysiology, and management of chronic pain, it is unknown to what (...)
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  • The Turnaway Study: Ten Years, a Thousand Women, and the Consequences of Having—or Being Denied—an Abortion by Diana Green Foster.Kathryn MacKay - 2021 - International Journal of Feminist Approaches to Bioethics 14 (2):196-200.
    One thousand women. Ten years. Diana Greene Foster’s epic Turnaway Study, and its namesake book, followed a thousand women who sought abortions across the United States for a decade after they were or were not successful in ending unwanted pregnancies to document how their lives changed. The result is a book rich in detail, full of facts about abortion in the United States—and somewhat more generally—that perhaps many of us knew or suspected but few could find in print. These facts (...)
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  • Prenatal Genetic Screening, Epistemic Justice, and Reproductive Autonomy.Amber Knight & Joshua Miller - 2021 - Hypatia 36 (1):1-21.
    Noninvasive prenatal testing promises to enhance women's reproductive autonomy by providing genetic information about the fetus, especially in the detection of genetic impairments like Down syndrome. In practice, however, NIPT provides opportunities for intensified manipulation and control over women's reproductive decisions. Applying Miranda Fricker's concept of epistemic injustice to prenatal screening, this article analyzes how medical professionals impair reproductive decision-making by perpetuating testimonial injustice. They do so by discrediting positive parental testimony about what it is like to raise a child (...)
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  • Relational autonomy: what does it mean and how is it used in end-of-life care? A systematic review of argument-based ethics literature.Carlos Gómez-Vírseda, Yves de Maeseneer & Chris Gastmans - 2019 - BMC Medical Ethics 20 (1):1-15.
    BackgroundRespect for autonomy is a key concept in contemporary bioethics and end-of-life ethics in particular. Despite this status, an individualistic interpretation of autonomy is being challenged from the perspective of different theoretical traditions. Many authors claim that the principle of respect for autonomy needs to be reconceptualised starting from a relational viewpoint. Along these lines, the notion of relational autonomy is attracting increasing attention in medical ethics. Yet, others argue that relational autonomy needs further clarification in order to be adequately (...)
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  • Trusting experts and epistemic humility in disability.Anita Ho - 2011 - International Journal of Feminist Approaches to Bioethics 4 (2):102-123.
    It is generally accepted that the therapeutic relationship between professionals and patients is one of trust. Nonetheless, some patient groups carry certain social vulnerabilities that can be exacerbated when they extend trust to health-care professionals. In exploring the epistemic and ethical implications of expert status, this paper examines how calls to trust may increase epistemic oppression and perpetuate the vulnerability of people with impairments. It critically evaluates the processes through which epistemic communities are formed or determined, and examines the institutional (...)
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  • Why bioethics needs a concept of vulnerability.Wendy Rogers, Catriona Mackenzie & Susan Dodds - 2012 - International Journal of Feminist Approaches to Bioethics 5 (2):11-38.
    Concern for human vulnerability seems to be at the heart of bioethical inquiry, but the concept of vulnerability is under-theorized in the bioethical literature. The aim of this article is to show why bioethics needs an adequately theorized and nuanced conception of vulnerability. We first review approaches to vulnerability in research ethics and public health ethics, and show that the bioethical literature associates vulnerability with risk of harm and exploitation, and limited capacity for autonomy. We identify some of the challenges (...)
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  • Feminist Approaches to Cognitive Disability.Licia Carlson - 2016 - Philosophy Compass 11 (10):541-553.
    This essay explores various philosophical approaches to cognitive disability within feminist philosophy. In doing so, it addresses three broad questions: What positive contributions can feminist philosophy make to the philosophy of cognitive disability? How have feminist philosophers critiqued the presence and absence of cognitive disability in philosophy? And what challenges does cognitive disability pose to feminist philosophy itself? The essay begins with definitions and models of disability and then turns to feminist work on cognitive disability in moral and political philosophy, (...)
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  • Toward an expansion of an enactive ethics with the help of care ethics.Petr Urban - 2014 - Frontiers in Psychology 5.
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  • Sexual Assault and the Meaning of Power and Authority for Women with Mental Disabilities.Janine Benedet & Isabel Grant - 2014 - Feminist Legal Studies 22 (2):131-154.
    The sexual assault of persons with mental disabilities occurs at alarmingly high rates worldwide. These assaults are a form of gender-based violence intersecting with discrimination based on disability. Our research on the treatment of such cases in the Canadian criminal justice system demonstrates the systemic barriers these victims face at the level of both substantive legal doctrine and trial procedure. Relying on feminist legal theory and disability theory, we argue in this paper that abuses of trust and power underlie most (...)
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  • Authenticity as a Necessary Condition for Voluntary Choice: A Case Study in Cancer Clinical Trial Participation.Jennifer Bell & Anita Ho - 2011 - American Journal of Bioethics 11 (8):33-35.
    The American Journal of Bioethics, Volume 11, Issue 8, Page 33-35, August 2011.
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  • What factors influence patient autonomy in healthcare decision-making? A systematic review of studies from the Global South.Muhammad Umair Akhtar, Muhammad Esswan Bhatti & Salim Fredericks - forthcoming - Nursing Ethics.
    Background The principle of respect for autonomy (PRA) is a central tenet of bioethics. In the quest for a global bioethics, it is pertinent to ask whether this principle can be applied as it is to cultures and societies that are devoid of the Western sociopolitical historical pressures that led to its emergence. Relational autonomists have argued for a more inclusive approach to patient autonomy which takes into account factors such as interdependency and social relations. However, at the outset of (...)
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  • In a Familiar Voice: The Dominant Role of Women in Shaping Canadian Policy on Medical Assistance in Dying.Daryl Pullman - unknown
    Among the many remarkable aspects of the June 2016 introduction of legislation to permit medical assistance in dying in Canada, is the central and even dominant role that women have played in moving this legislation forward, and their ongoing influence as the law continues to be reviewed and revised. The index medical cases on which the higher courts have deliberated concern women patients, and the legal decisions in the various courts have been presided over by women justices. Since the legislation (...)
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