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  1. Disability and the Complexity of Choice in the Ethics of Abortion and Voluntary Euthanasia.Shane Clifton - 2021 - Journal of Medicine and Philosophy 46 (4):431-450.
    In the polarized debates about abortion and voluntary euthanasia, disability advocates, who normally align with left-wing social forces, have tended to side with conservative and religious voices in expressing concerns about the impact of technological and sociopolitical developments on disabled futures. This paper draws on the social model of disability and the virtue ethics tradition to explain the alignment between the religious and disability perspectives, and the theory of transformative choice to highlight the limits and biases of the pro-choice logic. (...)
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  • (Re)Conceptualising ‘good’ proxy decision-making for research: the implications for proxy consent decision quality.Victoria Shepherd - 2022 - BMC Medical Ethics 23 (1):1-11.
    People who are unable to make decisions about participating in research rely on proxies to make a decision based on their wishes and preferences. However, patients rarely discuss their preferences about research and proxies find it challenging to determine what their wishes would be. While the process of informed consent has traditionally been the focus of research to improve consent decisions, the more conceptually complex area of what constitutes ‘good’ proxy decision-making for research has remained unexplored. Interventions are needed to (...)
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