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  1. Perceptions and Experiences of Community Members Serving on Institutional Review Boards: A Questionnaire Based Study.M. S. Kuyare, Padmaja A. Marathe, S. S. Kuyare & U. M. Thatte - 2015 - HEC Forum 27 (1):61-77.
    The community representative plays a very important role in an institutional review board but there is sparse data about their understanding of their role in an IRB. This study was conducted to assess perceptions of community members serving on IRBs of one region in India. A validated questionnaire was administered to community members of IRBs in a prospective cross-sectional study. The questions related to demography, perceptions of their role in the IRB, experiences while serving on the IRBs, difficulties faced by (...)
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  • Moving from the “Why” to the “How”: Two Approaches to Including Research Participants’ Voices.Stephanie Solomon Cargill - 2018 - IRB: Ethics & Human Research 40 (2):8-11.
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  • The participant’s voice: crowdsourced and undergraduate participants’ views toward ethics consent guidelines.Nadine S. J. Stirling & Melanie K. T. Takarangi - forthcoming - Ethics and Behavior.
    The informed consent process presents challenges for psychological trauma research (e.g. Institutional Review Board [IRB] apprehension). While previous research documents researcher and IRB-member perspectives on these challenges, participant views remain absent. Thus, using a mixed-methods approach, we investigated participant views on consent guidelines in two convenience samples: crowdsourced (N = 268) and undergraduate (N = 265) participants. We also examined whether trauma-exposure influenced participant views. Overall, participants were satisfied with current guidelines, providing minor feedback and ethical reminders for researchers. Moreover, (...)
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