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  1. Willingness to participate in health research: Tunisian survey.Wahid Bouida, Mohamed Habib Grissa, Asma Zorgati, Kaouthar Beltaief, Hamdi Boubaker, Asma Sriha, Riadh Boukef & Semir Nouira - 2016 - BMC Medical Ethics 17 (1):47.
    BackgroundFew studies have identified the willingness rate of developing countries population to be enrolled in clinical trials.MethodsAll participants including patients, healthy volunteers and doctors completed a questionnaire to examine factors affecting the consent to participate in medical research.ResultsOverall, 80 % of the included population agree to participate in health research. This rate was lower for trials dealing with life-threatening diseases. Altruism and perceived risk of harm were the main reason to respectively accept or refuse to participate in clinical trials. Factors (...)
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  • Attitudes, understanding, and concerns regarding medical research amongst Egyptians: A qualitative pilot study. [REVIEW]Susan S. Khalil, Henry J. Silverman, May Raafat, Samer El-Kamary & Maged El-Setouhy - 2007 - BMC Medical Ethics 8 (1):9.
    Medical research must involve the participation of human subjects. Knowledge of patients' perspectives and concerns with their involvement in research would enhance recruitment efforts, improve the informed consent process, and enhance the overall trust between patients and investigators. Several studies have examined the views of patients from Western countries. There is limited empirical research involving the perspectives of individuals from developing countries. The purpose of this study is to examine the attitudes of Egyptian individuals toward medical research. Such information would (...)
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  • “Hello, hello—it's English I speak!”: a qualitative exploration of patients' understanding of the science of clinical trials.M. Stead - 2005 - Journal of Medical Ethics 31 (11):664-669.
    Informed consent may be seriously compromised if patients fail to understand the experimental nature of the trial in which they are participating. Using focus groups, the authors explored how prospective trial participants interpret and understand the science of clinical trials by using patient information sheets relative to their medical condition. An opportunity was provided to hear in the patients’ own words how they interpret the information and why there is variable understanding. Respondents struggled to comprehend the meaning and purpose of (...)
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  • Benefits to research subjects in international trials: Do they reduce exploitation or increase undue inducement?Angela Ballantyne - 2006 - Developing World Bioethics 8 (3):178-191.
    There is an alleged tension between undue inducement and exploitation in research trials. This paper considers claims that increasing the benefits to research subjects enrolled in international, externally-sponsored clinical trials should be avoided on the grounds that it may result in the undue inducement of research subjects. This article contributes to the debate about exploitation versus undue inducement by introducing an analysis of the available empirical research into research participants' motivations and the influence of payments on research subjects' behaviour and (...)
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