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  1. Advance directives in dementia research: The opinions and arguments of clinical researchers − an empirical study.Karin Jongsma & Suzanne van de Vathorst - 2015 - Research Ethics 11 (1):4-14.
    In order to discover an effective treatment for dementia it is necessary to include dementia patients in clinical research trials. Dementia patients face an increased risk to lose the capacity to consent to research participation, and research possibilities with incompetent participants are legally strictly limited. One solution is for patients to consent to research through an advance research directive whilst still competent. In order to explore whether such a directive would be useful and valuable in practice we conducted a qualitative (...)
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