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  1. Differences that matter: developing critical insights into discourses of patient-centeredness.Bettine Pluut - 2016 - Medicine, Health Care and Philosophy 19 (4):501-515.
    Patient-centeredness can be considered a popular, and at the same time “fuzzy”, concept. Scientists have proposed different definitions and models. The present article studies scientific publications that discuss the meaning of patient-centeredness to identify different “discourses” of patient-centeredness. Three discourses are presented; the first is labelled as “caring for patients”, the second as “empowering patients” and the third as “being responsive”. Each of these discourses has different things to say about the why of patient-centeredness; the patient’s identity; the role of (...)
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  • ‘In a completely different light’? The role of ‘being affected’ for the epistemic perspectives and moral attitudes of patients, relatives and lay people.Silke Schicktanz, Mark Schweda & Martina Franzen - 2008 - Medicine, Health Care and Philosophy 11 (1):57-72.
    In this paper, we explore and discuss the use of the concept of being affected in biomedical decision making processes in Germany. The corresponding German term ‘Betroffenheit’ characterizes on the one hand a relation between a state of affairs and a person and on the other an emotional reaction that involves feelings like concern and empathy with the suffering of others. An example for the increasing relevance of being affected is the postulation of the participation of people with disabilities and (...)
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  • Care as a mutual endeavour: Experiences of a multiple sclerosis patient and her healthcare professionals. [REVIEW]Barth Oeseburg & Tineke A. Abma - 2006 - Medicine, Health Care and Philosophy 9 (3):349-357.
    In Dutch healthcare policy patients are seen as informed, autonomous experts and active decision makers with control over their illness and care. Healthcare professionals are expected to operate as providers of information. The purpose of this article is to argue that the consumerist approach of the patient–professional relationship is not a productive way to envision the patient–professional relationship. We argue that an interpretive/deliberative model is a more productive way to envision this relationship, especially in the care for people with a (...)
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  • What do patients with unmet medical needs want? A qualitative study of patients’ views and experiences with expanded access to unapproved, investigational treatments in the Netherlands.Eline M. Bunnik & Nikkie Aarts - 2019 - BMC Medical Ethics 20 (1):1-17.
    Background Patients with unmet medical needs sometimes resort to non-standard treatment options, including the use of unapproved, investigational drugs in the context of clinical trials, compassionate use or named-patient programs. The views and experiences of patients with unmet medical needs regarding unapproved, investigational drugs have not yet been examined empirically. Methods In this qualitative study, exploratory interviews and focus groups were held with patients with chronic or life-threatening diseases, about topics related to non-standard treatment options, such as the search for (...)
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  • Towards a genealogy of pharmacological practice.Ricardo Camargo & Nicolás Ried - 2016 - Medicine, Health Care and Philosophy 19 (1):85-94.
    Following Foucault’s work on disciplinary power and biopolitics, this article maps an initial cartography of the research areas to be traced by a genealogy of pharmacological practice. Pharmacology, as a practical activity, refers to the creation, production and sale of drugs/medication. This work identifies five lines of research that, although often disconnected from each other, may be observed in the specialized literature: pharmaceuticalization; regulation of the pharmaceutical industry; the political-economic structure of the pharmaceutical industry; consumption/consumerism of medications; and bio-knowledge. The (...)
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  • The Potential of the Imitation Game Method in Exploring Healthcare Professionals’ Understanding of the Lived Experiences and Practical Challenges of Chronically Ill Patients.Rik Wehrens - 2015 - Health Care Analysis 23 (3):253-271.
    This paper explores the potential and relevance of an innovative sociological research method known as the Imitation Game for research in health care. Whilst this method and its potential have until recently only been explored within sociology, there are many interesting and promising facets that may render this approach fruitful within the health care field, most notably to questions about the experiential knowledge or ‘expertise’ of chronically ill patients. The Imitation Game can be especially useful because it provides a way (...)
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  • Dialogue for Air, Air for Dialogue: Towards Shared Responsibilities in COPD Practice.Merel A. Visse, Truus Teunissen, Albert Peters, Guy A. M. Widdershoven & Tineke A. Abma - 2010 - Health Care Analysis 18 (4):358-373.
    For the past several years patients have been expected to play a key role in their recovery. Self management and disease management have reached a hype status. Considering these recent trends what does this mean for the division of responsibilities between doctors and patients? What kind of role should healthcare providers play? With findings based on a qualitative research project of an innovative practice for people with Chronic Obstructive Pulmonary Disease (COPD) we reflect on these questions. In-depth interviews conducted with (...)
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  • Struggling Between Strength and Vulnerability, a Patients’ Counter Story.G. J. Teunissen, M. A. Visse & T. A. Abma - 2015 - Health Care Analysis 23 (3):288-305.
    Currently, patients are expected to take control over their health and their life and act as independent users and consumers. Simultaneously, health care policy demands patients are expected to self manage their disease. This article critically questions whether this is a realistic expectation. The paper presents the auto-ethnographic narrative of the first author, which spans a period of 27 years, from 1985 to 2012. In total nine episodes were extracted from various notes, conversations and discussions in an iterative process. Each (...)
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  • Diversity and uniformity in genetic responsibility: moral attitudes of patients, relatives and lay people in Germany and Israel. [REVIEW]Aviad E. Raz & Silke Schicktanz - 2009 - Medicine, Health Care and Philosophy 12 (4):433-442.
    The professional and institutional responsibility for handling genetic knowledge is well discussed; less attention has been paid to how lay people and particularly people who are affected by genetic diseases perceive and frame such responsibilities. In this exploratory study we qualitatively examine the attitudes of lay people, patients and relatives of patients in Germany and Israel towards genetic testing. These attitudes are further examined in the national context of Germany and Israel, which represent opposite regulatory approaches and bioethical debates concerning (...)
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  • Patients as Experts, Participatory Sense-Making, and Relational Autonomy.Michelle Maiese - 2024 - Critica 56 (167):71-100.
    Although mental health professionals traditionally have been viewed as sole experts and decision-makers, there is increasing awareness that the experiential knowledge of former patients can make an important contribution to mental health practices. I argue that current patients likewise possess a kind of expertise, and that including them as active participants in diagnosis and treatment can strengthen their autonomy and allow them to build up important habits and skills. To make sense of these agential benefits and describe how patients might (...)
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