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  1. Collective forward-looking responsibility of patient advocacy organizations: conceptual and ethical analysis.Sabine Salloch, Christoph Rach & Regina Müller - 2021 - BMC Medical Ethics 22 (1):1-11.
    BackgroundPatient advocacy organizations (PAOs) have an increasing influence on health policy and biomedical research, therefore, questions about the specific character of their responsibility arise: Can PAOs bear moral responsibility and, if so, to whom are they responsible, for what and on which normative basis? Although the concept of responsibility in healthcare is strongly discussed, PAOs particularly have rarely been systematically analyzed as morally responsible agents. The aim of the current paper is to analyze the character of PAOs’ responsibility to provide (...)
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  • One For All, All For One? Collective Representation in Healthcare Policy.Karin Jongsma, Nitzan Rimon-Zarfaty, Aviad Raz & Silke Schicktanz - 2018 - Journal of Bioethical Inquiry 15 (3):337-340.
    Healthcare collectives, such as patient organizations, advocacy groups, disability organizations, professional associations, industry advocates, social movements, and health consumer organizations have been increasingly involved in healthcare policymaking. Such collectives are based on the idea that individual interests can be aggregated into collective interests by participation, deliberation, and representation. The topic of collectivity in healthcare, more specifically collective representation, has only rarely been addressed in bioethics. This symposium, entitled: “Collective Representation in Healthcare Policy” of the Journal of Bioethical Inquiry draws attention (...)
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