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  1. Ethical climate and moral distress in paediatric oncology nursing.Päivi Ventovaara, Margareta af Sandeberg, Janne Räsänen & Pernilla Pergert - forthcoming - Nursing Ethics:096973302199416.
    Background: Ethical climate and moral distress have been shown to affect nurses’ ethical behaviour. Despite the many ethical issues in paediatric oncology nursing, research is still lacking in the field. Research aim: To investigate paediatric oncology nurses’ perceptions of ethical climate and moral distress. Research design: In this cross-sectional study, data were collected using Finnish translations of the Swedish Hospital Ethical Climate Survey–Shortened and the Swedish Moral Distress Scale–Revised. Data analysis includes descriptive statistics and non-parametric analyses. Respondents and research context: (...)
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  • Translating and culturally adapting the shortened version of the Hospital Ethical Climate Survey – retaining or modifying validated instruments.Pernilla Pergert, Cecilia Bartholdson, Marika Wenemark, Kim Lützén & Margareta af Sandeberg - 2018 - BMC Medical Ethics 19 (1):35.
    The Hospital Ethical Climate Survey was developed in the USA and later shortened. HECS has previously been translated into Swedish and the aim of this study was to describe a process of translating and culturally adapting HECS-S and to develop a Swedish multi-professional version, relevant for paediatrics. Another aim was to describe decisions about retaining versus modifying the questionnaire in order to keep the Swedish version as close as possible to the original while achieving a good functional level and trustworthiness. (...)
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  • Moral distress in paediatric oncology: Contributing factors and group differences.Pernilla Pergert, Cecilia Bartholdson, Klas Blomgren & Margareta af Sandeberg - 2019 - Nursing Ethics 26 (7-8):2351-2363.
    Background:Providing oncological care to children is demanding and ethical issues concerning what is best for the child can contribute to moral distress.Objectives:To explore healthcare professionals’ experiences of situations that generate moral distress in Swedish paediatric oncology.Research design:In this national study, data collection was conducted using the Swedish Moral Distress Scale-Revised. The data analysis included descriptive statistics and non-parametric analysis of differences between groups.Participants and research context:Healthcare professionals at all paediatric oncology centres in Sweden were invited to participate. A total of (...)
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  • Ethical concerns when recruiting children with cancer for research: Swedish healthcare professionals’ perceptions and experiences.Kajsa Norbäck, Anna T. Höglund, Tove Godskesen & Sara Frygner-Holm - 2023 - BMC Medical Ethics 24 (1):1-13.
    Background Research is crucial to improve treatment, survival and quality of life for children with cancer. However, recruitment of children for research raises ethical challenges. The aim of this study was to explore and describe ethical values and challenges related to the recruitment of children with cancer for research, from the perspectives and experiences of healthcare professionals in the Swedish context. Another aim was to explore their perceptions of research ethics competence in recruiting children for research. Methods An explorative qualitative (...)
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  • Ethical climate in contemporary paediatric intensive care.Katie M. Moynihan, Lisa Taylor, Liz Crowe, Mary-Claire Balnaves, Helen Irving, Al Ozonoff, Robert D. Truog & Melanie Jansen - 2021 - Journal of Medical Ethics 47 (12):14-14.
    Ethical climate (EC) has been broadly described as how well institutions respond to ethical issues. Developing a tool to study and evaluate EC that aims to achieve sustained improvements requires a contemporary framework with identified relevant drivers. An extensive literature review was performed, reviewing existing EC definitions, tools and areas where EC has been studied; ethical challenges and relevance of EC in contemporary paediatric intensive care (PIC); and relevant ethical theories. We surmised that existing EC definitions and tools designed to (...)
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  • Ethical challenges as perceived by nurses in pediatric oncology units.Fateme Mohammadi, Zeinab Naderi, Leila Nikrouz, Khodayar Oshvandi, Seyedeh Zahra Masoumi, Parisa Sabetsarvestani & Mostafa Bijani - forthcoming - Nursing Ethics.
    Background Providing care to children with cancer is one of the most challenging areas of ethical care for nurses. Few studies have addressed nurses’ perception of the barriers to giving ethical care in oncology departments. Thus, it is essential that the ethical challenges in caregiving as perceived by oncology nurses be investigated. Objective The present study was conducted to investigate the ethical challenges as perceived by nurses in pediatric oncology units in the south of Iran. Research design The present study (...)
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  • Remapping the organ donation ethical climate: a care ethics consideration.Hui Yun Chan - 2020 - Medicine, Health Care and Philosophy 23 (2):295-308.
    Organ donation has gained much attention as the need for transplant exceeds the supply of organs. Various proposals have been put forward to address the organ shortage challenge, ranging from offering incentives to donors, addressing family refusals to donations and instituting presumed consent laws. Presumed consent as the favoured approach has not been universally effective in increasing actual transplants despite its appeal. Few considerations have been given to the broader ethical climate influencing the organ donation debate. This paper examines the (...)
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