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  1. Should We Trust Patient-Reported Outcomes?Marie-Christine Nizzi - 2021 - American Journal of Bioethics Neuroscience 12 (2-3):156-159.
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  • Felicitometric hermeneutics: interpreting quality of life measurements.Charles J. Kowalski, Jan L. Bernheim, Nancy Adair Birk & Peter Theuns - 2012 - Theoretical Medicine and Bioethics 33 (3):207-220.
    The use of quality of life (QOL) outcomes in clinical trials is increasing as a number of practical, ethical, methodological, and regulatory reasons for their use have become apparent. It is important, then, that QOL measurements and differences between QOL scores be readily interpretable. We study interpretation in two contexts: when determining QOL and when basing decisions on QOL differences. We consider both clinical situations involving individual patients and research contexts, e.g., randomized clinical trials, involving groups of patients. We note (...)
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  • Felicitometry: Measuring the 'quality' in quality of life.Charles Kowalski, Steven Pennell & Amiram Vinokur - 2008 - Bioethics 22 (6):307–313.
    Following Bernheim,1 we examine aspects of 'felicitometrics,'2 the measurement of the 'quality' term in Quality of Life (QOL). Bernheim argued that overall QOL is best captured as the Gestalt3 of a global self-assessment and suggested that the Anamnestic Comparative Self Assessment (ACSA) approach, in which subjects' memories of the best and worst times of their lives are used to anchor a Visual Analog Scale (VAS), provided a serious answer to the serious question, 'How have you been?' Bernheim compares and contrasts (...)
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  • Questions and Answers on the Belgian Model of Integral End-of-Life Care: Experiment? Prototype?: “Eu-Euthanasia”: The Close Historical, and Evidently Synergistic, Relationship Between Palliative Care and Euthanasia in Belgium: An Interview With a Doctor Involved in the Early Development of Both and Two of His Successors.Jan L. Bernheim, Wim Distelmans, Arsène Mullie & Michael A. Ashby - 2014 - Journal of Bioethical Inquiry 11 (4):507-529.
    This article analyses domestic and foreign reactions to a 2008 report in the British Medical Journal on the complementary and, as argued, synergistic relationship between palliative care and euthanasia in Belgium. The earliest initiators of palliative care in Belgium in the late 1970s held the view that access to proper palliative care was a precondition for euthanasia to be acceptable and that euthanasia and palliative care could, and should, develop together. Advocates of euthanasia including author Jan Bernheim, independent from but (...)
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  • Subjective wellbeing and psychological symptoms of university students during the COVID-19 pandemic: Results of a structured telephone interview in a large sample of university students.Imke Baetens, Johan Vanderfaeillie, Veerle Soyez, Tim Vantilborgh, Joyce Van Den Meersschaut, Chris Schotte & Peter Theuns - 2022 - Frontiers in Psychology 13.
    University students are at elevated risk for psychological distress, especially during the COVID-19 pandemic. The aim of this study was to warmly contact our students and investigate the psychological impact of the COVID-19 pandemic on the subjective wellbeing and levels of psychological symptoms of university students in Belgium. All bachelor and master students of the Vrije Universiteit Brussels were invited for a brief structured telephone interview in March, 2021. In total, 7,154 students were assessed by a structured interview, based on (...)
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