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  1. Open notes and broader parallels in digital health: a commentary on C. Bleases 'Sharing online clinical notes with patients.Sarah Chang & John Torous - 2022 - Journal of Medical Ethics 49 (1):22-23.
    With more countries implementing Open Notes, the practice of providing patients with unhindered access to their clinical visit notes, research on this practice is finally increasing. Many studies report positive findings, especially around self-reported outcomes, such as feeling more in control of one’s care, increased medication adherence and a strengthened patient–doctor relationship. 1 However, comparatively less research has been done on the potential ramifications that may also arise from Open Notes. Blease’s recent article underscores this and demonstrates why Open Notes (...)
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  • Using open notes to advance nocebo research: challenges and opportunities.Marco Annoni - 2022 - Journal of Medical Ethics 49 (1):26-27.
    In this article, Charlotte Blease argues that patient access to online shared clinical notes (also called ‘open notes’) may cause or exacerbate nocebo effects in two ways. 1 First, open notes may enhance patient understanding about the adverse effects of medications and treatments. However, reading information about adverse effects may lead patients to form negative expectations that, in turn, may cause or worsen symptoms via nocebo mechanisms. Second, open notes may paradoxically lower the quality of the therapeutic relationship by allowing (...)
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  • Nocebo effects: a price worth paying for full transparency?Brian McMillan & Gail Davidge - 2022 - Journal of Medical Ethics 49 (1):30-31.
    This article on the potential for patient online records access (ORA) to increase the likelihood of nocebo effects is timely, 1 given the recent introduction of full prospective records access for primary care patients in England. 2 Blease provides a convincing overview of the evidence for the nocebo effect and examines the complex interplay with health inequities. The article proposes two mechanisms for ORA augmenting nocebo effects through: (A) patients reading about possible negative outcomes of treatments and (B) a negative (...))
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  • Nocebo effects from clinical notes: reason for action, not opposition for clinicians of patients with medically unexplained symptoms.Anna Kharko & Maria Hägglund - 2022 - Journal of Medical Ethics 49 (1):24-25.
    In her paper, ‘Sharing online clinical notes with patients: implications for nocebo effects and health equity’, Blease bridges findings from two research fields to describe possible unintended consequences of providing patients access to clinical notes. 1 She explains how nocebo effects, genuine psychological and physiological reactions following negative expectations, may arise after patients read such notes. Blease emphasises that the likelihood of nocebo may be greater for those patient groups who experience stigmatisation in healthcare. We argue that this is the (...)
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  • Open notes: Unintended consequences and teachable moments.George Patrick Joseph Hutchins, Valerie E. Stone & Kathryn T. Hall - 2022 - Journal of Medical Ethics 49 (1):28-29.
    While positive information in the context of clinical care can lead to placebo effects, negatively framed information can have negative or nocebo effects. Extant literature documents how doctor–patient encounters are fertile ground for suboptimal interactions leading to negative experiences for ethnoracial minority patients. In their _JME_ paper, Blease presents a critical perspective on the potential for patients’ access to their doctors’ clinical notes, ‘open notes’, to engender nocebo effects. 1 In this commentary, we affirm the central claim that nocebo effects (...)
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