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  1. What Matters to the Parents? a qualitative study of parents' experiences with life-and-death decisions concerning their premature infants.Berit Støre Brinchmann, Reidun Førde & Per Nortvedt - 2002 - Nursing Ethics 9 (4):388-404.
    The aim of this article is to generate knowledge about parents’ participation in life-and-death decisions concerning their very premature and/or critically ill infants in hospital neonatal units. The question is: what are parents’ attitudes towards their involvement in such decision making? A descriptive study design using in-depth interviews was chosen. During the period 1997-2000, 20 qualitative interviews with 35 parents of 26 children were carried out. Ten of the infants died; 16 were alive at the time of the interview. The (...)
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  • How Much Weight Should We Give To Parental Interests In Decisions About Life Support For Newborn Infants?Dominic Wilkinson - 2010 - Monash Bioethics Review 29 (2):16-40.
    Life-sustaining treatment is sometimes withdrawn or withheld from critically ill newborn infants with poor prognosis. Guidelines relating to such decisions place emphasis on the best interests of the infant. However, in practice, parental views and parental interests are often taken into consideration.In this paper I draw on the example of newborn infants with severe muscle weakness (for example spinal muscular atrophy). I provide two arguments that parental interests should be given some weight in decisions about treatment, and that they should (...)
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