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From rites to rights of passage : ideals, politics, and the evolution of the American hospice movement

In Timothy W. Kirk & Bruce Jennings (eds.), Hospice Ethics: Policy and Practice in Palliative Care. Oxford: Oxford University Press (2014)

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  1. Acknowledging vulnerability in ethics of palliative care – A feminist ethics approach.Sofia Morberg Jämterud - 2022 - Nursing Ethics 29 (4):952-961.
    Patients in need of palliative care are often described as vulnerable. Being vulnerable can sometimes be interpreted as the opposite of being autonomous, if an autonomous person is seen as an independent, self-sufficient person who forms decisions independently of others. Such a dichotomous view can create a situation where one has experiences of vulnerability that cannot be reconciled with the central ethical principle of autonomy. The article presents a feminist ethical perspective on the conceptualisation of vulnerability in the context of (...)
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  • (1 other version)US Hospice Structure and its Implications for the “Right to Die” Debate: An Interdisciplinary Study of the “Feeling of Being a Burden to Others”.Harold Braswell - 2019 - Journal of Bioethical Inquiry 16 (4):525-534.
    This article is an analysis of the relationship between US hospice structure and the feeling of being a burden to others. A goal of US hospice care is to reduce the FBO. But in America, hospice is limited in its ability to do so because of the high caregiver burden it places on family members of dying people. Through a historical study, I show that this burden was excessive when the hospice system was created and has worsened over time. Through (...)
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  • (1 other version)US Hospice Structure and its Implications for the “Right to Die” Debate.Harold Braswell - 2019 - Journal of Bioethical Inquiry 16 (4):525-534.
    This article is an analysis of the relationship between US hospice structure and the feeling of being a burden to others (FBO). A goal of US hospice care is to reduce the FBO. But in America, hospice is limited in its ability to do so because of the high caregiver burden it places on family members of dying people. Through a historical study, I show that this burden was excessive when the hospice system was created and has worsened over time. (...)
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