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  1. Autonomy gone awry: A cross-cultural study of parents' experiences in neonatal intensive care units.Kristina Orfali & Elisa Gordon - 2004 - Theoretical Medicine and Bioethics 25 (4):329-365.
    This paper examines parents experiences of medical decision-making and coping with having a critically ill baby in the Neonatal Intensive Care Unit (NICU) from a cross-cultural perspective (France vs. U.S.A.). Though parents experiences in the NICU were very similar despite cultural and institutional differences, each system addresses their needs in a different way. Interviews with parents show that French parents expressed overall higher satisfaction with the care of their babies and were better able to cope with the loss of their (...)
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  • Dutch Protocols for Deliberately Ending the Life of Newborns: A Defence.Matthew Tedesco - 2017 - Journal of Bioethical Inquiry 14 (2):251-259.
    The Groningen Protocol, introduced in the Netherlands in 2005 and accompanied by revised guidelines published in a report commissioned by the Royal Dutch Medical Association in 2014, specifies conditions under which the lives of severely ill newborns may be deliberately ended. Its publication came four years after the Netherlands became the first nation to legalize the voluntary active euthanasia of adults, and the Netherlands remains the only country to offer a pathway to protecting physicians who might engage in deliberately ending (...)
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  • Standards, norms, and guidelines for permissible withdrawal of life support from seriously compromised newborns.John J. Paris - 2011 - American Journal of Bioethics 11 (2):33 - 34.
    (2011). Standards, Norms, and Guidelines for Permissible Withdrawal of Life Support From Seriously Compromised Newborns. The American Journal of Bioethics: Vol. 11, No. 2, pp. 33-34.
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  • Parental refusal of medical treatment for a newborn.John J. Paris, Michael D. Schreiber & Michael P. Moreland - 2007 - Theoretical Medicine and Bioethics 28 (5):427-441.
    When there is a conflict between parents and the physician over appropriate care due to an infant whose decision prevails? What standard, if any, should guide such decisions?This article traces the varying standards articulated over the past three decades from the proposal in Duff and Campbell’s 1973 essay that these decisions are best left to the parents to the Baby Doe Regs of the 1980s which required every life that could be salvaged be continued. We conclude with support for the (...)
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