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  1. The Limits of Privacy: Surveillance and the Control of Disease.Ronald Bayer & Amy Fairchild - 2002 - Health Care Analysis 10 (1):19-35.
    What justified the Center for Disease Control's1999 determination to require HIV casereporting? Why were names necessary? Why didopponents view the reporting of names with suchalarm? This paper retells the history of theencounters over HIV reporting that had occurredsince the mid 1980s. In placing HIV reportingwithin a larger context, however, we understandthe clash between privacy and public healthnecessity as a complex issue, both inhistorical and contemporary practice. Byunderscoring the similarities and differenceswith the histories of surveillance for otherinfectious diseases, vaccination, occupationaldiseases, cancer, (...)
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  • The genesis of public health ethics.Ronald Bayer & Amy L. Fairchild - 2004 - Bioethics 18 (6):473–492.
    ABSTRACT As bioethics emerged in the 1960s and 1970s and began to have enormous impacts on the practice of medicine and research – fuelled, by broad socio‐political changes that gave rise to the struggle of women, African Americans, gay men and lesbians, and the antiauthoritarian impulse that characterised the New Left in democratic capitalist societies – little attention was given to the question of the ethics of public health. This was all the more striking since the core values and practices (...)
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  • Attitudes of the Japanese public and doctors towards use of archived information and samples without informed consent: Preliminary findings based on focus group interviews. [REVIEW]Fukuhara Shunichi, Sekimoto Miho, Nishigaki Etsuyo, Ohnishi Motoki, Asai Atsushi & Fukui Tsuguya - 2002 - BMC Medical Ethics 3 (1):1-10.
    Background The purpose of this study is to explore laypersons' attitudes toward the use of archived (existing) materials such as medical records and biological samples and to compare them with the attitudes of physicians who are involved in medical research. Methods Three focus group interviews were conducted, in which seven Japanese male members of the general public, seven female members of the general public and seven physicians participated. Results It was revealed that the lay public expressed diverse attitudes towards the (...)
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  • Public attitudes towards the use of primary care patient record data in medical research without consent: a qualitative study.M. R. Robling - 2004 - Journal of Medical Ethics 30 (1):104-109.
    Objectives: Recent legislative changes within the United Kingdom have stimulated professional debate about access to patient data within research. However, there is currently little awareness of public views about such research. The authors sought to explore attitudes of the public, and their lay representatives, towards the use of primary care medical record data for research when patient consent was not being sought.Methods: 49 members of the public and four non-medical members of local community health councils in South Wales, UK gave (...)
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  • Hospital Consent for Disclosure of Medical Records.Jon F. Merz, Pamela Sankar & Simon S. Yoo - 1998 - Journal of Law, Medicine and Ethics 26 (3):241-248.
    Physicians and other health care providers owe ethical and legal duties to patients to maintain the secrecy of the information learned during the course of patient care. This obligation is fulfilled by limiting access to such information to only those involved in the patient's care-that is, to those within the “circle of confidentiality.” As a general rule, providers may only disclose to others with the written prior consent of the patient. Exceptions may be “ethically and legally justified because of overriding (...)
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  • Ethical Principles for the Conduct of Human Subject Research: Population-Based Research and Ethics.Larry Gostin - 1991 - Journal of Law, Medicine and Ethics 19 (3-4):191-201.
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  • Ethical Principles for the Conduct of Human Subject Research: Population-Based Research and Ethics.Larry Gostin - 1991 - Journal of Law, Medicine and Ethics 19 (3-4):191-201.
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  • Is there a need or space for gene technology ethics: An Australian perspective.Don Chalmers - 2008 - In Darryl R. J. Macer (ed.), Asia-Pacific Perspectives on Biotechnology and Bioethics. Unesco Bangkok. pp. 1888.
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  • Is the era of the therapy by tailor-made stem cell coming?Miyako Okada-Takagi - 2008 - In Darryl R. J. Macer (ed.), Asia-Pacific Perspectives on Biotechnology and Bioethics. Unesco Bangkok. pp. 1987.
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