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International Genomics Research Involving the San People

In Doris Schroeder, Julie Cook, François Hirsch, Solveig Fenet & Vasantha Muthuswamy (eds.), Ethics Dumping: Case Studies from North-South Research Collaborations. New York: Springer. pp. 15-22 (2017)

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  1. Environmental and Biosafety Research Ethics Committees: Guidelines and Principles for Ethics Reviewers in the South African Context.Maricel Van Rooyen - 2021 - Dissertation, Stellenbosch University
    Over the last two decades, there was an upsurge of research and innovation in biotechnology and related fields, leading to exciting new discoveries in areas such as the engineering of biological processes, gene editing, stem cell research, CRISPR-Cas9 technology, Synthetic Biology, recombinant DNA, LMOs and GMOs, to mention only a few. At the same time, these advances generated concerns about biosafety, biosecurity and adverse impacts on biodiversity and the environment, leading to the establishment of Research Ethics Committees (RECs) at Higher (...)
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  • Ethical issues in global neuroimaging genetics collaborations.Andrea Palk, Judy Illes, Paul Thompson & D. Stein - 2020 - NeuroImage 117208 (221):1-10.
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  • Ethics Dumping – How not to do research in resource-poor settings.Doris Schroeder, Kate Chatfield, Vasantha Muthuswamy & Nandini K. Kumar - unknown
    Ethics dumping is a global phenomenon involving the ‘off-shoring’of research. Research that would be prohibited, severely restrictedor regarded as highly patronizing in high-income regions is instead conducted inresource-poor settings. Twenty-eight case studies of ethics dumping were examined through inductive thematic analysis to reveal predisposing factors from the perspective of researchers from high-income regions. Six categories were agreed and further illuminated: Patronizing conduct, unfair distribution of benefits and/or burdens, culturally inappropriate conduct, double standards, lack of due diligence and lack of transparency. (...)
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  • Equitable Research Partnerships: A Global Code of Conduct to Counter Ethics Dumping.Doris Schroeder, Kate Chatfield, Roger Chennells, Peter Herissone-Kelly & Michelle Singh - 2019 - Springer Verlag.
    This open access book offers insights into the development of the ground-breaking Global Code of Conduct for Research in Resource-Poor Settings (GCC) and the San Code of Research Ethics. Using a new, intuitive moral framework predicated on fairness, respect, care and honesty, both codes target ethics dumping – the export of unethical research practices from a high-income setting to a lower- or middle-income setting. The book is a rich resource of information and argument for any research stakeholder who opposes double (...)
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  • Handling Ethics Dumping and Neo-Colonial Research: From the Laboratory to the Academic Literature.Jaime A. Teixeira da Silva - 2022 - Journal of Bioethical Inquiry 19 (3):433-443.
    This paper explores that the topic of ethics dumping, its causes and potential remedies. In ED, the weaknesses or gaps in ethics policies and systems of lower income countries are intentionally exploited for intellectual or financial gains through research and publishing by higher income countries with a more stringent or complex ethical infrastructure in which such research and publishing practices would not be permitted. Several examples are provided. Possible ED needs to be evaluated before research takes place, and detected prior (...)
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