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  1. Evaluating models of consent in changing health research environments.Svenja Wiertz & Joachim Boldt - 2022 - Medicine, Health Care and Philosophy 25 (2):269-280.
    While Specific Informed Consent has been the established standard for obtaining consent for medical research for many years, it does not appear suitable for large-scale biobank and health data research. Thus, alternative forms of consent have been suggested, based on a variety of ethical background assumptions. This article identifies five main ethical perspectives at stake. Even though Tiered Consent, Dynamic Consent and Meta Consent are designed to the demands of the self-determination perspective as well as the perspective of research as (...)
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  • Recruitment into Clinical Trials: Between Rocks and Hard Places.Howard Trachtman - 2014 - Journal of Clinical Research and Bioethics 5 (3).
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  • Individual benefits and collective challenges: Experts’ views on data-driven approaches in medical research and healthcare in the German context.Silke Schicktanz & Lorina Buhr - 2022 - Big Data and Society 9 (1).
    Healthcare provision, like many other sectors of society, is undergoing major changes due to the increased use of data-driven methods and technologies. This increased reliance on big data in medicine can lead to shifts in the norms that guide healthcare providers and patients. Continuous critical normative reflection is called for to track such potential changes. This article presents the results of an interview-based study with 20 German and Swiss experts from the fields of medicine, life science research, informatics and humanities (...)
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