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  1. Who Counts as Family: A Pluralistic Account of Family in the Genetic Context.Serene Ong - 2022 - International Journal of Feminist Approaches to Bioethics 15 (2):1-21.
    Genetic information affects patients’ families differently than other types of medical information. Family members might have a compelling interest in patients’ genetic information, but who counts as family? In this article, I assess current definitions of family and propose a pluralistic account of family, which comprises definitions of family based on biomedical, legal, and functional aspects. Respectful of various forms of family, a pluralistic account includes those with interests in genetic information. Finally, I apply it in the hypothetical case of (...)
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  • Informed consent, genomic research and mental health: A integrative review.Nina Kilkku & Arja Halkoaho - 2022 - Nursing Ethics 29 (4):973-987.
    BackgroundResearch on genomics has increased while the biobank activities are becoming more common in different countries. In the mental health field, the questions concerning the potential participants’ vulnerability as well as capacity to give the informed consent can cause reluctancy in recruiting persons with mental health problems, although the knowledge and understanding of mental health problems has remarkable changed, and practice is guided with inclusive approaches, such as recovery approach.AimThe aim of this study was to describe the current knowledge of (...)
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