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  1. (1 other version)Population Genomics and Research Ethics with Socially Identifable Groups.Joan L. McGregor - 2007 - Journal of Law, Medicine and Ethics 35 (3):356-370.
    In this paper, the author questions whether the research ethics guidelines and procedures are robust enough to protect groups when conducting genetics research with socially identifiable populations, particularly with Native American groups. The author argues for a change in the federal guidelines in substance and procedures of conducting genetic research with socially identifiable groups.
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  • Linked Descendants: Genetic-genealogical Practices and the Refusal of Ignorance around Slavery.Sarah Abel - 2022 - Science, Technology, and Human Values 47 (4):726-749.
    The recent expansion of online genetic-genealogical networks has been hailed as a development that could break racial taboos in the United States by providing irrefutable evidence of the myriad historical and genetic links—many originating in slavery—connecting white and black families. These predictions are countered, however, by a scholarly literature on “white ignorance,” defined as an active historical project that works to prevent privileged groups from apprehending their links to, and positionality within, systems of racial oppression. This paper mobilizes concepts from (...)
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  • (1 other version)Population Genomics and Research Ethics with Socially Identifiable Groups.Joan L. McGregor - 2007 - Journal of Law, Medicine and Ethics 35 (3):356-370.
    The genetic revolution is well underway, with genetic research and knowledge expanding at an exponential rate. Much of the new genetics research is focused on population groups, and proponents of “population genomics” argue that such studies are necessary since genetic “variation” among human populations holds the most promise for technological innovations that can improve human health and lead to increased understanding of the origin of human populations. Population genomic research thus targets specific groups to discover variation that could lead to (...)
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  • The Whiteness of Bioethics.Warwick Anderson - 2021 - Journal of Bioethical Inquiry 18 (1):93-97.
    A discussion of whiteness as an “ethos” or “relational category” in bioethics, drawing on examples from medical and historical research.
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