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Me Medicine vs. We Medicine: Reclaiming Biotechnology for the Common Good

New York, USA: Columbia University Press (2013)

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  1. The “We” in the “Me”: Solidarity and Health Care in the Era of Personalized Medicine.Barbara Prainsack - 2018 - Science, Technology, and Human Values 43 (1):21-44.
    This article challenges a key tacit assumption underpinning legal and ethical instruments in health care, namely, that people are ideally bounded, independent, and often also strategically rational individuals. Such an understanding of personhood has been criticized within feminist and other critical scholarship as being unfit to capture the deeply relational nature of human beings. In the field of medicine, however, it also causes tangible problems. I propose that a solidarity-based perspective entails a relational approach and as such helps to formulate (...)
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  • “Now Is a Time for Optimism”: The Politics of Personalized Medicine in Mental Health Research.Jonas Rüppel - 2019 - Science, Technology, and Human Values 44 (4):581-611.
    Since the completion of the Human Genome Project, personalized medicine has become one of the most influential visions guiding medical research. This paper focuses on the politics of personalized medicine in psychiatry as a medical specialty, which has rarely been investigated by social science scholars. I examine how this vision is being sustained and even increasingly institutionalized within the mental health arena, even though related research has repeatedly failed. Based on a document analysis and expert interviews, this article identifies discursive (...)
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  • On Bioethics and the Commodified Body: An Interview with Donna Dickenson.Donna Dickenson & Alana Cattapan - 2016 - Studies in Social Justice 10 (2):342-351.
    Interview on the commodified body with Donna Dickenson by Alana Cattapan.
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  • Schemata, CONSORT, and the Salk Polio Vaccine Trial.Charles J. Kowalski & Adam J. Mrdjenovich - 2018 - Journal of Medicine and Philosophy 43 (1):64-82.
    In this essay, we defend the design of the Salk polio vaccine trial and try to put some limits on the role schemata should play in designing clinical research studies. Our presentation is structured as a response to de Freitas and Pietrobon who identified the CONSORT statement as a schema that would have, had it existed at the time, ruled out the design of the Salk polio vaccine trial of 1954 in favor of a completely randomized controlled clinical trial. We (...)
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  • Patient and Citizen Participation in Health: The Need for Improved Ethical Support.Laura Williamson - 2014 - American Journal of Bioethics 14 (6):4-16.
    Patient and citizen participation is now regarded as central to the promotion of sustainable health and health care. Involvement efforts create and encounter many diverse ethical challenges that have the potential to enhance or undermine their success. This article examines different expressions of patient and citizen participation and the support health ethics offers. It is contended that despite its prominence and the link between patient empowerment and autonomy, traditional bioethics is insufficient to guide participation efforts. In addition, the turn to (...)
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