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  1. Getting It Right: How Public Engagement Might (and Might Not) Help Us Determine What Is Equitable in Genomics and Precision Medicine.Sara Chandros Hull, Lawrence C. Brody & Rene Sterling - 2023 - American Journal of Bioethics 23 (7):5-8.
    The timing of this special issue of AJOB probing whether public engagement (PE)1 might help achieve equity in genomics is no coincidence. While many issues discussed by the authors are not entirely...
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  • When Less is More: Lessons for Expanded Carrier Screening from Newborn Sequencing Research.Josephine Johnston - 2023 - American Journal of Bioethics 23 (7):118-120.
    In 2013, the U.S. National Institutes of Health funded four large interdisciplinary research projects exploring the “implications, challenges and opportunities associated with the possible use of g...
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  • From Community-Based Carrier Programs to Opportunistic Carrier Screening: How the Objective of Carrier Screening Was Lost in Translation.Anne-Marie Laberge - 2023 - American Journal of Bioethics 23 (7):123-126.
    I agree with Dive et al. (2023) “that generating and reporting information about genetic variants beyond the scope of the screening program usually lacks clinical, and perhaps personal, utility” an...
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  • Innovating for a Just and Equitable Future in Genomic and Precision Medicine Research.Deanne Dunbar Dolan, Mildred K. Cho & Sandra Soo-Jin Lee - 2023 - American Journal of Bioethics 23 (7):1-4.
    From its inception, genomics has been a speculative endeavor, fixated on a far-off horizon that would deliver on the promise of targeted diagnostics and individualized therapeutics (Fortun 2008). M...
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  • Whose Genome? Which Genetics?Bryan Cwik - 2023 - American Journal of Bioethics 23 (7):50-53.
    Despite what many critics see as an inability to deliver much in the way of therapeutic value (Hunter and Drazen 2019), genetics remains a bottomless source of fascination, trepidation, and reflect...
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  • Narrative Equity in Genomic Screening at the Population Level.Rosemarie Garland-Thomson & S. A. Larson - 2023 - American Journal of Bioethics 23 (7):121-123.
    Dive et al. argue to limit the scope, scale, and quantity of results in genomic screening programs at the population level. Their analysis offers two interrelated reasons for this recommendation: f...
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  • Disclosing Reproductive Genetic Carrier Status: What about the Donor?Dorian Accoe - 2023 - American Journal of Bioethics 23 (7):126-128.
    In their recent article, Dive, Holmes, and Newson (2023) argue that genetic information should be reported in accordance with the aims of reproductive genetic carrier screening (RGCS). Referring to...
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