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When science offers salvation: patient advocacy and research ethics

New York: Oxford University Press (2001)

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  1. Health Research Priority Setting: The Duties of Individual Funders.Leah Pierson & Joseph Millum - 2018 - American Journal of Bioethics 18 (11):6-17.
    The vast majority of health research resources are used to study conditions that affect a small, advantaged portion of the global population. This distribution has been widely criticized as inequitable and threatens to exacerbate health disparities. However, there has been little systematic work on what individual health research funders ought to do in response. In this article, we analyze the general and special duties of research funders to the different populations that might benefit from health research. We assess how these (...)
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  • Enlisting the Experts: Experienced Research Participants in Study Planning.Rebecca Dresser - 2020 - American Journal of Bioethics 20 (5):20-22.
    Volume 20, Issue 5, June 2020, Page 20-22.
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  • Avoiding a Tyranny of the Majority: Public Deliberation as Citizen Science, Sensitive Issues, and Vulnerable Populations.Mary A. Ott & Amelia S. Knopf - 2019 - American Journal of Bioethics 19 (8):28-31.
    Citizen science is touted as a means of making science more inclusive and democratic. However, when citizens are drawn from societies with significant socioeconomic and racial disparities, citizen...
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  • Reimagining the Goal of Informed Consent to Help Patients Make Decisions About Research.Benjamin S. Wilfond & Kathryn M. Porter - 2020 - American Journal of Bioethics 20 (5):22-23.
    Volume 20, Issue 5, June 2020, Page 22-23.
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  • Should Patient Groups Have the Power to Redirect How Their Samples Are Used?Eleanor T. Chung & Benjamin E. Berkman - 2019 - American Journal of Bioethics 19 (8):26-28.
    The authors of the target article briefly discuss the issue of “sample ownership” when scientists collaborate with citizen science partners (Wiggins and Wilbanks 2019). This is an important issue,...
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