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  1. Autisme Als Meerduidig En Dynamisch Fenomeen.Kristien Hens & Leni Van Goidsenhoven - 2018 - Algemeen Nederlands Tijdschrift voor Wijsbegeerte 110 (4):421-451.
    Autism as a polysemic and dynamic phenomenonIn this paper we demonstrate how the dominant discourse about autism, that stresses biological explanations, has certain ethical implications. On the one hand, such discourse is exculpating. In autism’s history, genetic explanations helped removing the blame from so-called refrigerator mothers. In present-day diagnostic practice, the idea of having a biological diagnosis helps people and their parents see beyond blame and guilt. On the other hand, a simplistic approach to biology risks neglecting the experiences and (...)
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  • Toward a Framework for Assessing Privacy Risks in Multi-Omic Research and Databases.Charles Dupras & Eline M. Bunnik - forthcoming - American Journal of Bioethics:1-32.
    While the accumulation and increased circulation of genomic data have captured much attention over the past decade, privacy risks raised by the diversification and integration of omics have been la...
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  • Human Rights in the Postgenomic Era: Challenges and Opportunities Arising with Epigenetics.Charles Dupras, Yann Joly & Emmanuelle Rial-Sebbag - 2020 - Social Science Information 59 (1):12-34.
    Over the past twenty-five years, international organizations have adopted human rights declarations in an attempt to address emerging ethical, legal and social concerns associated with genetic research and technologies. While these declarations point to important challenges and potential issues in genetics, the focus on genetics has been criticized for promoting the idea that there is something unique about our genes, and that therefore, they deserve special protections in our laws. It is also argued that this ‘genetic exceptionalism’ perspective has contributed (...)
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  • Prevention in the Age of Personal Responsibility: Epigenetic Risk-Predictive Screening for Female Cancers as a Case Study.Ineke Bolt, Eline M. Bunnik, Krista Tromp, Nora Pashayan, Martin Widschwendter & Inez de Beaufort - forthcoming - Journal of Medical Ethics:medethics-2020-106146.
    Epigenetic markers could potentially be used for risk assessment in risk-stratified population-based cancer screening programmes. Whereas current screening programmes generally aim to detect existing cancer, epigenetic markers could be used to provide risk estimates for not-yet-existing cancers. Epigenetic risk-predictive tests may thus allow for new opportunities for risk assessment for developing cancer in the future. Since epigenetic changes are presumed to be modifiable, preventive measures, such as lifestyle modification, could be used to reduce the risk of cancer. Moreover, epigenetic markers (...)
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  • Epigenetics Changes Nothing: What a New Scientific Field Does and Does Not Mean for Ethics and Social Justice.Jonathan Y. Huang & Nicholas B. King - 2018 - Public Health Ethics 11 (1):69-81.
    Recently, ethicists have posited that consideration of epigenetic mechanisms presents novel challenges to concepts of justice and equality of opportunity, such as elevating the importance of environments in bioethics and providing a counterpoint to gross genetic determinism. We argue that new findings in epigenetic sciences, including those regarding intergenerational health effects, do not necessitate reconceptualization of theories of justice or the environment. To the contrary, such claims reflect a flawed understanding of epigenetics and its relation to genetics that may unintentionally (...)
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  • Race in the Postgenomic Era: Social Epigenetics Calling for Interdisciplinary Ethical Safeguards.Katie M. Saulnier & Charles Dupras - 2017 - American Journal of Bioethics 17 (9):58-60.
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