Employing Critical Autism Studies and Narrative Analysis, this project examines how autistic Twitter users engage in narrative meaning-making through social media. By analyzing the hashtags #ActuallyAutistic and #AskingAutistics this project broadly explores how individuals construct identity when lacking access to positive representations and identity communities. Answering the research question, “How do autistic people construct individual and collective identity narratives through Twitter?,” findings indicate that autistic Twitter users use their social media presence to build virtual learning communities. Common knowledge about autism (...) is often oversimplified and highly medicalized. Therefore, autistics use Twitter to make meaning of their experiences that are not represented within cultural notions of what it means to be autistic. Autistic Twitter users reject medicalized narratives by contesting stereotypes, flipping negative narratives into positive stories, re-inscribing “deficiencies” as beneficial, and resisting rehabilitation and “cure.” Users do important social activist work by building strong autistic communities in ways that counter current negative representation, constructing positive self-affirming individual and community identities and resisting eugenic notions that autistic people are “less valuable.”. (shrink)

Narrative ethics taps into an inherent human need to tell our own stories centred on our own moral values and to have those stories heard and acknowledged. However, not everyone’s words are afforded equal power. The use of narrative ethics in bioethical decision-making is problematized by a disparity in whose stories are told, whose stories are heard, and whose stories are believed. Here, I conduct an analysis of narrative ethics through a critical theory lens to show how entrenched patterns of (...) narrative neglect in medicine are harming not only our capacity to make use of narrative ethics but also our capacity to deliver effective healthcare. To illustrate this point, I use three examples where the patient’s gender affects how their stories unfold: autism, weight, and pain management. From these, I argue that the use of narrative ethics without the application of a critical theory lens risks the exacerbation of what Miranda Fricker refers to as “testimonial injustice,” the prima facie harm experienced by individuals whose credibility is undermined by others’ prejudices. Finally, I suggest that narrative ethics can be a powerful tool for mitigating oppressive practices in medicine if we couple it with critical analysis that enables us to understand the power dynamics at play in storytelling. (shrink)

Arising out of the heightened sensory perceptions of extended lockdown, this creative investigation began with contemplation of flowering street-trees. Through 262 days of lock down, residents of Melbourne retreated to the hyper-local, often reinforced by a 5-km travel bubble and a one-hour daily time limit outdoors. The sublime ephemeral springtime flowers of street-trees were amplified by the extreme sensory and social constraints of social distancing. Drawing us into a suspended moment of slow encounter, we attuned to the contained glowing pulse (...) of plants. The works were created using photogrammetry, a technique for generating 3D models from a large set of photographs taken from all angles of the botanical specimen. Whilst the point-cloud models remain the central artefact of vegetal/digital, it has been presented in a range of formats throughout 2022–23, including multichannel video loops, augmented reality, webXR, gestural interactive works and still prints. This work invites an embodied experience of attuning to both the vegetal and the digital. This is consistent with my alignment with queer and autistic politics, of siding with the object. Increasingly, queer cultural practices are employing new materialism and posthumanism to interrogate the agency of things and the culturally constituted hierarchies of objects and subjects. The reconfiguration of embodied relations is necessary in order to reconceive a viable future. (shrink)