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  1. Biobanking and consenting to research: a qualitative thematic analysis of young people’s perspectives in the North East of England.Momodou Ndure, Isatou Sarr, Anna Roca, Kalifa Bojang, Effua Usuf, Fiona Cresswell, Elizabeth Fitchett, David Bath, Manuel Dewez, Shunmay Yeung, Sebastian Schroepf, Carola Schoen, Karl Reiter, Esther Maier, Eberhard Lurz, Matthias Kappler, Sabrina Juranek, Tobias Feuchtinger, Matthias Griese, Florian Hoffmann, Niklaus Haas, Katharina Danhauser, Irene Alba-Alejandre, Ioanna Mavridi, Patricia Schmied, Laura Kolberg, Ulrich von Both, Maike K. Tauchert, Elmar Wallner, Volker Strenger, Andrea Skrabl-Baumgartner, Siegfried Rödl, Klaus Pfurtscheller, Andreas Pfleger, Heidemarie Pilch, Tobias Niedrist, Sabine Löffler, Markus Keldorfer, Andreas Kapper, Christa Hude, Almuthe Hauer, Harald Haidl, Siegfried Gallistl, Ernst Eber, Astrid Ceolotto, Martin Benesch, Sebastian Bauchinger, Manfred G. Sagmeister, Martina Strempfl, Bianca Stoiser, Glorija Rajic, Alexandra Rusu, Lena Pölz, Manuel Leitner, Susanne Hösele, Christoph Zurl, Nina A. Schweintzger, Daniel S. Kohlfürst, Benno Kohlmaier & Ale Binder - 2023 - BMC Medical Ethics 24 (1):1-11.
    BackgroundBiobanking biospecimens and consent are common practice in paediatric research. We need to explore children and young people’s (CYP) knowledge and perspectives around the use of and consent to biobanking. This will ensure meaningful informed consent can be obtained and improve current consent procedures.MethodsWe designed a survey, in co-production with CYP, collecting demographic data, views on biobanking, and consent using three scenarios: 1) prospective consent, 2) deferred consent, and 3) reconsent and assent at age of capacity. The survey was disseminated (...)
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