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  1. The Case of Hannah Capes: How Much Does Consciousness Matter?Lois Shepherd, C. William Pike, Jesse B. Persily & Mary Faith Marshall - 2022 - Neuroethics 15 (1):1-16.
    A recent legal case involving an ambiguous diagnosis in a woman with a severe disorder of consciousness raises pressing questions about treatment withdrawal in a time when much of what experts know about disorders of consciousness is undergoing revision and refinement. How much should diagnostic certainty about consciousness matter? For the judge who refused to allow withdrawal of artificial nutrition and hydration, it was dispositive. Rather than relying on substituted judgment or best interests to determine treatment decisions, he ruled that (...)
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  • Pragmatism and the Importance of Interdisciplinary Teams in Investigating Personality Changes Following DBS.Cynthia S. Kubu, Paul J. Ford, Joshua A. Wilt, Amanda R. Merner, Michelle Montpetite, Jaclyn Zeigler & Eric Racine - 2019 - Neuroethics 14 (1):95-105.
    Gilbert and colleagues point out the discrepancy between the limited empirical data illustrating changes in personality following implantation of deep brain stimulating electrodes and the vast number of conceptual neuroethics papers implying that these changes are widespread, deleterious, and clinically significant. Their findings are reminiscent of C. P. Snow’s essay on the divide between the two cultures of the humanities and the sciences. This division in the literature raises significant ethical concerns surrounding unjustified fear of personality changes in the context (...)
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  • Pragmatism and the Importance of Interdisciplinary Teams in Investigating Personality Changes Following DBS.Cynthia S. Kubu, Paul J. Ford, Joshua A. Wilt, Amanda R. Merner, Michelle Montpetite, Jaclyn Zeigler & Eric Racine - 2019 - Neuroethics 14 (1):95-105.
    Gilbert and colleagues point out the discrepancy between the limited empirical data illustrating changes in personality following implantation of deep brain stimulating electrodes and the vast number of conceptual neuroethics papers implying that these changes are widespread, deleterious, and clinically significant. Their findings are reminiscent of C. P. Snow’s essay on the divide between the two cultures of the humanities and the sciences. This division in the literature raises significant ethical concerns surrounding unjustified fear of personality changes in the context (...)
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  • Pragmatism and the Importance of Interdisciplinary Teams in Investigating Personality Changes Following DBS.Cynthia S. Kubu, Paul J. Ford, Joshua A. Wilt, Amanda R. Merner, Michelle Montpetite, Jaclyn Zeigler & Eric Racine - 2019 - Neuroethics 14 (1):95-105.
    Gilbert and colleagues point out the discrepancy between the limited empirical data illustrating changes in personality following implantation of deep brain stimulating electrodes and the vast number of conceptual neuroethics papers implying that these changes are widespread, deleterious, and clinically significant. Their findings are reminiscent of C. P. Snow’s essay on the divide between the two cultures of the humanities and the sciences. This division in the literature raises significant ethical concerns surrounding unjustified fear of personality changes in the context (...)
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  • When No One Notices: Disorders of Consciousness and the Chronic Vegetative State.Joseph J. Fins - 2019 - Hastings Center Report 49 (4):14-17.
    On January 5, 2019, the Associated Press reported that a woman thought to have been in the vegetative state for over a decade gave birth at a Hacienda HealthCare facility. Until she delivered, the staff at the Phoenix center had not noticed that their patient was pregnant. The patient was also misdiagnosed.Misdiagnosis of patients with disorders of consciousness in institutional settings is more the norm than the exception. Misdiagnosis is also connected to a broad and extremely significant change in the (...)
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  • Disorders of Consciousness, Past, Present, and Future.Joseph J. Fins - 2019 - Cambridge Quarterly of Healthcare Ethics 28 (4):603-615.
    Abstract:This paper, presented as the 2019 Cambridge Quarterly Neuroethics NetworkCharcot Lecture, traces the nosology of disorders of consciousness in light of 2018 practice guidelines promulgated by the American Academy of Neurology, the American College of Rehabilitation Medicine and the National Institute on Disability, Independent Living and Rehabilitation Research. By exploring the ancient origins of Jennett and Plum’s persistent vegetative state and subsequent refinements in the classification of disorders of consciousness—epitomized by the minimally conscious state, cognitive motor dissociation, and the recently (...)
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