W wielu państwach funkcjonują narodowe/centralne komitety bioetyki, których rolą jest monitorowanie i opiniowanie aktualnych problemów bioetycznych pojawiających się ze względu na postęp wiedzy medycznej oraz nauk biologicznych. Procedura ich powoływania oraz sposoby działania, a także wpływ na praktykę różnią się w poszczególnych krajach. UNESCO opracowała szereg wskazówek dotyczących organizacji i funkcjonowania tego typu ciał. W Polsce istnieje potrzeba sprecyzowania zasad działania narodowego/centralnego komitetu bioetyki. Celem tekstu jest przegląd prawnych możliwości powoływania i funkcjonowania komitetów bioetycznych o charakterze narodowym/centralnym wraz z przedstawieniem (...) ich roli oraz refleksją nad kształtem, miejscem, znaczeniem i funkcją tego typu ciała w warunkach polskich. (shrink)

BackgroundNational Ethics Committees (NECs) offer important oversight and guidance functions and facilitate public debate on bioethical issues. In an increasingly globalized world where technological advances, multi-national research collaborations, and pandemics are creating ethical dilemmas that transcend national borders, coordination and the joining of efforts among NECs are key. The purpose of this study is to take stock of the current NEC landscape, their varying roles and missions, and the range of bioethical topics on which they deliberated since their inception.MethodsData on (...) the availability, functions, and ethical deliberations (publications) of NECs globally were gathered through a systematic search of NEC websites and through contacts known to the authors. The search was conducted in English, French, and Spanish. The data abstraction was done in Excel and included the NEC’s country, region, functions, and deliberations on bioethical issues. Deliberation topics were classified into thematic categories through an iterative process of regrouping to arrive at the main set of themes.Results124 NECs in 100 countries were identified. 44% of the NECs are in Europe and 47% are in high-income countries. Out of the 1108 retrieved publications, 40% were on bioethics in the context of research, followed by the clinic (28%) and public health issues (22%). The top five topics of these publications were: research ethics (124; 9%), genetics and genomics (62; 6%), organ transplantation (58; 5%), assisted reproductive technology (49; 4%), and end of life (36; 3%).ConclusionOur study makes an important contribution to understanding the current interests and functions of NECs and the range of their bioethics deliberations. By making the data publicly available through this publication, it allows users to conduct tailored analyses and queries based on their interests, and to seek and strengthen collaboration and exchange. It also makes the case for the fruitfulness of developing and maintaining a global repository of current and new deliberations to more effectively advance this field for the greater good of humanity, research, and public health. (shrink)