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  1. Research Use of Electronic Health Records: Patients’ Views on Alternative Approaches to Permission.Catherine M. Hammack-Aviran, Kathleen M. Brelsford, Kevin C. McKenna, Ross D. Graham, Zachary M. Lampron & Laura M. Beskow - 2020 - AJOB Empirical Bioethics 11 (3):172-186.
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  • Views on sharing mental health data for research purposes: qualitative analysis of interviews with people with mental illness.Emily Watson, Sue Fletcher-Watson & Elizabeth Joy Kirkham - 2023 - BMC Medical Ethics 24 (1):1-12.
    Background Improving the ways in which routinely-collected mental health data are shared could facilitate substantial advances in research and treatment. However, this process should only be undertaken in partnership with those who provide such data. Despite relatively widespread investigation of public perspectives on health data sharing more generally, there is a lack of research on the views of people with mental illness. Methods Twelve people with lived experience of mental illness took part in semi-structured interviews via online video software. Participants (...)
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