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  1. Development of an Instrument to Investigate Parents' Perceptions of Research with Newborn Babies.Kathleen Oberle, Nalini Singhal, Joelene Huber & Ellen Burgess - 2000 - Nursing Ethics 7 (4):327-338.
    Neonatal intensive care nurses are often involved in research protocols as investigators, research assistants or staff nurses implementing the protocol and providing support and explanations to families. It is important, therefore, that nurses have information about parents’ understanding of and attitudes towards the research process. The purpose of this study was to begin an exploration of parents’ perceptions about research with newborn babies through the development and validation of a survey instrument. The questionnaire included: demographic questions; scaled items about research (...)
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  • Aftercare for participants in clinical research: ethical considerations in an asthma drug trial.S. C. Harth & Y. H. Thong - 1995 - Journal of Medical Ethics 21 (4):225-228.
    The issue of aftercare for participants in clinical research was explored in the context of an asthma drug trial. Although there may be financial constraints and practical difficulties with implementation, the results show that it may be feasible for clinical investigators and commercial sponsors to take on some limited responsibility for the medical care of research subjects after clinical trials. However, the ethical implications for this practice remain unclear. On the one hand, society may have a moral obligation to compensate (...)
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  • How do parents experience being asked to enter a child in a randomised controlled trial?Valerie Shilling & Bridget Young - 2009 - BMC Medical Ethics 10 (1):1-.
    BackgroundAs the number of randomised controlled trials of medicines for children increases, it becomes progressively more important to understand the experiences of parents who are asked to enrol their child in a trial. This paper presents a narrative review of research evidence on parents' experiences of trial recruitment focussing on qualitative research, which allows them to articulate their views in their own words.DiscussionParents want to do their best for their children, and socially and legally their role is to care for (...)
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