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Declaration of Helsinki

In Hugh LaFollette (ed.), The International Encyclopedia of Ethics. Hoboken, NJ: Blackwell (2013)

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  1. (1 other version)Wanted—egg donors for research: A research ethics approach to donor recruitment and compensation.Angela Ballantyne & Sheryl de Lacey - 2008 - International Journal of Feminist Approaches to Bioethics 1 (2):145-164.
    As the demand for human eggs for stem cell research increases, debate about appropriate standards for recruitment and compensation of women intensifies. In the majority of cases, the source of eggs for research is women undergoing fertility treatment requiring ovarian stimulation and egg retrieval. The principle of "just participant selection" requires that research subjects be selected from the population that stands to benefit from the research. Based on this principle, infertile women should be actively recruited to donate eggs for fertility-related (...)
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  • A qualitative study on aspects of consent for genomic research in communities with low literacy.Daima Bukini, Columba Mbekenga, Siana Nkya, Lisa Purvis, Sheryl McCurdy, Michael Parker & Julie Makani - 2020 - BMC Medical Ethics 21 (1):1-7.
    BackgroundLow literacy of study participants in Sub - Saharan Africa has been associated with poor comprehension during the consenting process in research participation. The concerns in comprehension are far greater when consenting to participate in genomic studies due to the complexity of the science involved. While efforts are made to explore possibilities of applying genomic technologies in diseases prevalent in Sub Saharan Africa, we ought to develop methods to improve participants’ comprehension for genomic studies. The purpose of this study was (...)
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  • The Social Value of Knowledge and International Clinical Research.Danielle M. Wenner - 2013 - Developing World Bioethics 15 (2):76-84.
    In light of the growth in the conduct of international clinical research in developing populations, this paper seeks to explore what is owed to developing world communities who host international clinical research. Although existing paradigms for assigning and assessing benefits to host communities offer valuable insight, I criticize their failure to distinguish between those benefits which can justify the conduct of research in a developing world setting and those which cannot. I argue that the justification for human subjects research is (...)
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