Automated decision-making (ADM) systems can be worn in and on the body for various purposes, such as for tracking and managing chronic conditions. One case in point is do-it-yourself open-source artificial pancreas systems, through which users engage in what is referred to as “looping”; combining continuous glucose monitors and insulin pumps placed on the body with digital communication technologies to develop an ADM system for personal diabetes management. The idea behind these personalized systems is to delegate decision-making regarding insulin to (...) an algorithm that can make autonomous decisions. Based on interviews and photo diaries with Danish “loopers”, this paper highlights two interrelated narratives of how users have to care for the loop by _maintaining_ a stable communication circuit between body and ADM system, and by _modifying_ the loop through analysis and reflection. It shows how the human takes turns with the ADM system through practical doings and anticipation to safeguard continuous management of chronic disease. (shrink)

This article explores yet another paradox – aside from the privacy paradox – related to the datafication of media: citizens trust least the media they use most It investigates the role that daily life plays in shaping the trust that citizens place in datafied media. The study reveals five sets of heuristics guiding the trust assessments of citizens: characteristics of media organisations, old media standards, context of use and purpose, experiences of datafication and understandings of datafication. The article discusses the (...) use of these heuristics and the value that everyday life holds in assessing trust in datafied media. It concludes that, guided by a partial ‘structure of perception’ and enticed into trusting datafied media in the context of their daily lives, citizens may be highly concerned by the datafication of media but use them nevertheless. (shrink)

While many forms of data-driven surveillance are now a ‘fact’ of contemporary life amidst datafication, obtaining concrete knowledge of how different institutions exploit data presents an ongoing challenge, requiring the expertise and power to untangle increasingly complex and opaque technological and institutional arrangements. The how and why of potential surveillance are thus wrapped in a form of continuously produced uncertainty. How then, do affected groups and individuals determine how to counter the threats and harms of surveillance? Responding to an interdisciplinary (...) concern with agency amidst datafication, this article explores what I term ‘anticipatory data practices’ – future-oriented practices which provide a concrete anchor and a heuristic for action amidst the persistent uncertainties of life with data. This article traces how anticipatory data practices have emerged within civil society practices concerned with countering the harms of surveillance and data exploitation. The mixed-method empirical analysis of this article draws from 50 interviews with digital security educators and technology developers; participant observation at 12 civil society events between 2016 and 2019 and the textual analysis of 100 security manuals produced by NGOs and grassroots groups. (shrink)