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  1. The Role of Exceptionalism in the Evolution of Bioethical Regulation.Sergei Shevchenko & Alexey Zhavoronkov - 2024 - Cambridge Quarterly of Healthcare Ethics 33 (2):185-197.
    The paper aims to present a critical analysis of the phenomenon and notion of exceptionalism in bioethics. The authors demonstrate that exceptionalism pertains to phenomena that are not (yet) entirely familiar to us and could potentially bear risks regarding their regulation. After an overview of the state of the art, we briefly describe the origins and evolution of the concept, compared to exception and exclusion. In the second step, they look at the overall development debates on genetic exceptionalism, compared to (...)
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  • Ethics of crisis sedation: questions of performance and consent.Nathan Emmerich & Bert Gordijn - 2019 - Journal of Medical Ethics 45 (5):339-345.
    This paper focuses on the practice of injecting patients who are dying with a relatively high dose of sedatives in response to a catastrophic event that will shortly precipitate death, something that we term ‘crisis sedation.’ We first present a confabulated case that illustrates the kind of events we have in mind, before offering a more detailed account of the practice. We then comment on some of the ethical issues that crisis sedation might raise. We identify the primary value of (...)
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  • Current controversies and irresolvable disagreement: the case of Vincent Lambert and the role of ‘dissensus’.Dominic Wilkinson & Julian Savulescu - 2019 - Journal of Medical Ethics 45 (10):631-635.
    Controversial cases in medical ethics are, by their very nature, divisive. There are disagreements that revolve around questions of fact or of value. Ethical debate may help in resolving those disagreements. However, sometimes in such cases, there are opposing reasonable views arising from deep-seated differences in ethical values. It is unclear that agreement and consensus will ever be possible. In this paper, we discuss the recent controversial case of Vincent Lambert, a French man, diagnosed with a vegetative state, for whom (...)
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  • Intentions at the End of Life: Continuous Deep Sedation and France’s Claeys-Leonetti law.Steven Farrelly-Jackson - 2024 - Journal of Medicine and Philosophy 49 (1):43-57.
    In 2016, France passed a major law that is unique in giving terminally ill and suffering patients the right to the controversial procedure of continuous deep sedation until death (CDS). In so doing, the law identifies CDS as a sui generis clinical practice, distinct from other forms of palliative sedation therapy, as well as from euthanasia. As such, it reconfigures the ethical debate over CDS in interesting ways. This paper addresses one aspect of this reconfiguration and its implications for the (...)
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