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  1. Return of Results in Population Studies: How Do Participants Perceive Them?Hélène Nobile, Pascal Borry, Jennifer Moldenhauer & Manuela M. Bergmann - forthcoming - Public Health Ethics.
    As a cornerstone of public health, epidemiology has lately undergone substantial changes enabled by, among other factors, the use of biobank infrastructures. In biobank-related research, the return of results to participants constitutes an important and complex ethical question. In this study, we qualitatively investigated how individuals perceive the results returned following their participation in cohort studies with biobanks. In our semi-structured interviews with 31 participants of two such German studies, we observed that some participants overestimate the nature of the personal (...)
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  • Incorporating Biobank Consent Into a Healthcare Setting: Challenges for Patient Understanding.T. J. Kasperbauer, Karen K. Schmidt, Ariane Thomas, Susan M. Perkins & Peter H. Schwartz - 2021 - AJOB Empirical Bioethics 12 (2):113-122.
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