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  1. Research Use of Electronic Health Records: Patients’ Views on Alternative Approaches to Permission.Catherine M. Hammack-Aviran, Kathleen M. Brelsford, Kevin C. McKenna, Ross D. Graham, Zachary M. Lampron & Laura M. Beskow - 2020 - AJOB Empirical Bioethics 11 (3):172-186.
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  • Utilisations secondaires des données de santé : impacts de la transparence.Emmanuel Bilodeau, Annabelle Cumyn, Jean Ménard, Adrien Barton, Roxanne Dault & Jean-François Ethier - 2024 - Canadian Journal of Bioethics / Revue canadienne de bioéthique 7 (2-3):118-137.
    The notion of transparency regularly comes up in discussions about the secondary uses of health data. Few studies, however, examine the impact of the presence or absence of transparency on members of the public. This literature review responds to this gap in the scientific literature. It is the result of a secondary analysis of 124 texts from an exploratory review on transparency, following the PRISMAS-ScR guidelines. The results help to identify negative or positive impacts and associate these with certain communication (...)
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