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  1. The acceptability of conducting data linkage research without obtaining consent: lay people’s views and justifications.Vicki Xafis - 2015 - BMC Medical Ethics 16 (1):79.
    A key ethical issue arising in data linkage research relates to consent requirements. Patients’ consent preferences in the context of health research have been explored but their consent preferences regarding data linkage specifically have been under-explored. In addition, the views on data linkage are often those of patient groups. As a result, little is known about lay people’s views and their preferences about consent requirements in the context of data linkage. This study explores lay people’s views and justifications regarding the (...)
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  • Towards a Design Toolkit of Informed Consent Models Across Fields: A Systematic Review.Iris Loosman & Philip J. Nickel - 2022 - Science and Engineering Ethics 28 (5):1-19.
    In the 60+ years that the modern concept of informed consent has been around, researchers in various fields of practice, especially medical ethics, have developed new models to overcome theoretical and practical problems. While (systematic) literature reviews of such models exist within given fields (e.g., genetic screening), this article breaks ground by analyzing academic literature on consent models across fields. Three electronic research databases (Scopus, Google Scholar, and Web of Science) were searched for publications mentioning informed consent models. The titles, (...)
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