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  1. Safeguarding Users of Consumer Mental Health Apps in Research and Product Improvement Studies: an Interview Study.Kamiel Verbeke, Charu Jain, Ambra Shpendi & Pascal Borry - 2024 - Neuroethics 17 (1):1-20.
    Mental health-related data generated by app users during the routine use of Consumer Mental Health Apps (CMHAs) are being increasingly leveraged for research and product improvement studies. However, it remains unclear which ethical safeguards and practices should be implemented by researchers and app developers to protect users during these studies, and concerns have been raised over their current implementation in CMHAs. To better understand which ethical safeguards and practices are implemented, why and how, 17 app developers and researchers were interviewed (...)
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  • Response to Open Peer Commentaries on “Ethical Responsibilities for Companies That Process Personal Data”.Matthew S. McCoy, Ezekiel J. Emanuel & Steven Joffe - 2024 - American Journal of Bioethics 24 (3):1-5.
    We’re grateful for the thoughtful and incisive commentaries on our article, “Ethical Responsibilities for Companies that Process Personal Data” (McCoy et al. 2023). In the article, we propose the E...
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  • Strategies for Data Ethics Governance: Elevating Patient and Community Perspectives.Austin M. Stroud, Journey L. Wise, Susan H. Curtis & Michelle L. McGowan - 2023 - American Journal of Bioethics 23 (11):48-50.
    McCoy and colleagues (2023) offer a reflective framework for data ethics and governance with several historical bioethics principles as a foundation. Their framework is one among a plethora of othe...
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  • Translating Commercial Health Data Privacy Ethics into Change.Kayte Spector-Bagdady & I. I. W. Nicholson Price - 2023 - American Journal of Bioethics 23 (11):7-10.
    Hundreds of articles have been written over the past several decades delineating the ethical tensions of health data commercialization, empirically querying the preferences of data contributors, an...
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  • Empowering Queer Data Justice.Anthony K. J. Smith, Allegra Schermuly, Christy E. Newman, Lisa Fitzgerald & Mark D. M. Davis - 2023 - American Journal of Bioethics 23 (11):56-58.
    The proliferation of personal data collection practices fundamentally reshapes how society is ordered and commercialized, and demands reconsideration of the possibilities for a just and equitable s...
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  • “Large Language Models” Do Much More than Just Language: Some Bioethical Implications of Multi-Modal AI.Joshua August Skorburg, Kristina L. Kupferschmidt & Graham W. Taylor - 2023 - American Journal of Bioethics 23 (10):110-113.
    Cohen (2023) takes a fair and measured approach to the question of what ChatGPT means for bioethics. The hype cycles around AI often obscure the fact that ethicists have developed robust frameworks...
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  • The Ethical Data Practices Framework and Its Implications for Data Privacy Relations between the United States and the European Union.Vasiliki Rahimzadeh - 2023 - American Journal of Bioethics 23 (11):29-33.
    Private companies are data-rich. But market pressures to collect more, store more, and analyze more consumer data can often make them ethically bankrupt in the way of proactively protecting consume...
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  • Beyond Individual Rights: How Data Solidarity Gives People Meaningful Control over Data.Barbara Prainsack & Seliem El-Sayed - 2023 - American Journal of Bioethics 23 (11):36-39.
    In today’s digital societies, it has become very difficult for people to exercise meaningful control over what and how data is collected and used. McCoy and colleagues (2023) seek to address this p...
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  • The Urgent Need for a U.S. Data Protection Agency.Efthimios Parasidis - 2023 - American Journal of Bioethics 23 (11):26-29.
    For decades American companies have been at the forefront of technology, big data, and artificial intelligence. Hundreds of articles have detailed bioethical issues stemming from these data practic...
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  • Moving from Models to Responsible AI as a Moat.Ashwini Nagappan - 2023 - American Journal of Bioethics 23 (10):113-115.
    In his article, “What Should ChatGPT Mean for Bioethics?” Cohen (2023) highlights novel bioethical issues raised by the emergence of ChatGPT and generative AI more broadly. Among the thought-provok...
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  • Responsible Processing and Sharing of Genomic Data: Bringing Health Technologies Industries to the Table.Bartha Maria Knoppers, Shane Chase, Yann Joly, Ma’N. Zawati & Adrian Thorogood - 2023 - American Journal of Bioethics 23 (11):33-35.
    The article “Ethical Responsibilities for Companies that Process Personal Data” (McCoy et al. 2023) provides a principled and pragmatic ethical framework for companies collecting, sharing, and usin...
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  • Applying the Ethical Data Practices Framework to Digital Therapeutics.Odia Kane & Kadija Ferryman - 2023 - American Journal of Bioethics 23 (11):53-56.
    In their article “Ethical Responsibilities for Companies that Process Personal Data”, McCoy and colleagues (2023) propose the Ethical Data Practices Framework as a tool for navigating and preventin...
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  • How a US Federal Privacy Law Covering Digital Health Services Can Put Autonomy Back into the Hands of the Patient.Jennifer Eunbee Jin - 2023 - American Journal of Bioethics 23 (11):45-47.
    McCoy et al. introduces the novel Ethical Data Practices Framework and its six core principles to serve as a useful tool to inform both industry and lawmakers of key ethical principles for prospect...
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  • It is Time to Shift from a Rights-Based Approach to a Common Good Approach in the Era of Big Data.Yuanyuan Huang & Yali Cong - 2023 - American Journal of Bioethics 23 (11):50-53.
    This commentary focuses on two issues. First, reflecting on the distinction between public and private institutions in protecting individual rights is necessary. Second, the current regulatory appr...
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  • Digital Privacy and Data Protection: From Ethical Principles to Action.Ravi Gupta - 2023 - American Journal of Bioethics 23 (11):24-26.
    The spread of digital technology to all parts of our lives has led to meaningful benefits, ranging from the conveniences offered by ride-sharing apps to prediction of mental health crises and track...
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  • Blockchain Technology for Ethical Data Practices: Decentralized Biobanking Pilot Study.Marielle Gross, Amelia J. Hood & William Lancelot Sanchez - 2023 - American Journal of Bioethics 23 (11):60-63.
    Decentralized biobanking “de-bi” applies blockchain technology and web3 values to embed the procedural principles of transparency, accountability, and inclusion into the biomedical research ecosyst...
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  • No Means No: Respecting Dignity as the Fourth Principle of Ethical Data Extraction.Tessa Gavina & Alice Cavolo - 2023 - American Journal of Bioethics 23 (11):59-60.
    In “Ethical Responsibilities for Companies that Process Personal Data” McCoy et al. (2023) proposed three substantive principles that should underlie corporations’ treatment of data: minimizing har...
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  • The Limits of a Voluntary Framework in an Unethical Data Ecosystem.Leah R. Fowler, Anya E. R. Prince & Michael R. Ulrich - 2023 - American Journal of Bioethics 23 (11):39-41.
    The need for greater privacy protections in the United States has never been greater. In their work, “Ethical Responsibilities for Companies That Process Personal Data”, McCoy et al. (2023) correct...
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  • Computational Ethics Tools to Audit Corporate Self-Governance in Data Processing.Christine R. Deeney & Kristin Kostick-Quenet - 2023 - American Journal of Bioethics 23 (11):42-44.
    Frameworks for responsible data stewardship, such as that proposed by McCoy et al. (2023), are intended to encourage and provide guidelines for data processors to engage in responsible data process...
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