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  1. Ethics of care challenge to advance directives for dementia patients.William Jinwoong Choi - forthcoming - Journal of Medical Ethics.
    Advance directives for withholding life-saving treatment are controversial for dementia patients whose previously expressed wishes conflict with their currently expressed desires. To illustrate this ethical dilemma, McMahan conceives a hypothetical case in which an intellectually proud creative woman signs an advance directive stipulating her refusal to receive life-saving treatment if she contracts a fatal condition with dementia. However, when she develops dementia and forgets this advance directive, she contracts pneumonia and now expresses a desire to live. In response to such (...)
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  • First prosecution of a Dutch doctor since the Euthanasia Act of 2002: what does the verdict mean?Eva Constance Alida Asscher & Suzanne van de Vathorst - 2020 - Journal of Medical Ethics 46 (2):71-75.
    On 11 September 2019, the verdict was read in the first prosecution of a doctor for euthanasia since the Termination of Life on Request and Assisted Suicide Act of 2002 was installed in the Netherlands. The case concerned euthanasia on the basis of an advance euthanasia directive for a patient with severe dementia. In this paper we describe the review process for euthanasia cases in the Netherlands. Then we describe the case in detail, the judgement of the Regional Review Committees (...)
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  • On the Authority of Advance Euthanasia Directives for People with Severe Dementia: Reflections on a Dutch Case.Henri Wijsbek & Thomas Nys - 2022 - Hastings Center Report 52 (5):24-31.
    Hastings Center Report, Volume 52, Issue 5, Page 24-31, September–October 2022.
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  • ‘Mrs A’: a controversial or extreme case?Jesse Wall - 2019 - Journal of Medical Ethics 45 (2):77-78.
    It is sometimes said by legal scholars that ‘hard cases make bad law’, by which they mean an extreme case provides a poor lens through which to view general laws. It can be said in retort that ‘bad laws make hard cases’; implying that the case may be a controversial one only because the general laws that govern it are poorly formulated. The same tension may be found in medical ethics. Perhaps extreme cases provide a poor lens through which to (...)
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  • Euthanasia requests in dementia cases; what are experiences and needs of Dutch physicians? A qualitative interview study.Jaap Schuurmans, Romy Bouwmeester, Lamar Crombach, Tessa van Rijssel, Lizzy Wingens, Kristina Georgieva, Nadine O’Shea, Stephanie Vos, Bram Tilburgs & Yvonne Engels - 2019 - BMC Medical Ethics 20 (1):1-9.
    In the Netherlands, in 2002, euthanasia became a legitimate medical act, only allowed when the due care criteria and procedural requirements are met. Legally, an Advanced Euthanasia Directive can replace direct communication if a patient can no longer express his own wishes. In the past decade, an exponential number of persons with dementia share a euthanasia request with their physician. The impact this on physicians, and the consequent support needs, remained unknown. Our objective was to gain more insight into the (...)
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  • AEDs are problematic, but Mrs A is a misleading case.Paul T. Menzel - 2019 - Journal of Medical Ethics 45 (2):90-91.
    The case of Mrs A is a provocative example of euthanasia by advance directive to avoid increasingly severe dementia. It is also a ‘perfect storm’ of a disturbing case, revealing both the challenges that can arise with advance euthanasia directives generally and particular issues in the Dutch procedures. Kim, Miller and Dresser have done a distinct service to bioethics in detailing the case, in explaining the basis of the regional euthanasia review committee reprimand of the administering geriatrician and in highlighting (...)
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  • We Should Widen Access to Physician-Assisted Death.Jordan MacKenzie & Adam Lerner - 2021 - Journal of Moral Philosophy 19 (2):139-169.
    Typical philosophical discussions of physician-assisted death have focused on whether the practice can be permissible. We address a different question: assuming that pad can be morally permissible, how far does that permission extend? We will argue that granting requests for pad may be permissible even when the pad recipient can no longer speak for themselves. In particular, we argue against the ‘competency requirement’ that constrains pad-eligibility to presently-competent patients in most countries that have legalized pad. We think pad on terminally (...)
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  • Response to: ‘Dementia and advance directives: some empirical and normative concerns’ by Jongsma et al.Scott Y. H. Kim, David Gibbes Miller & Rebecca Dresser - 2019 - Journal of Medical Ethics 45 (2):95-96.
    We are grateful to Jongsma et al 1 for their interest in our article analysing the case of ‘Mrs A’, a Dutch woman with Alzheimer’s disease who received euthanasia based on her advance euthanasia directive.2 Their commentary criticises two elements of our analysis. First, the authors believe our reasons for doubting that Mrs A had the capacity to write and revise an AED rely on ‘partial’ empirical data and rest on normative errors. Second, they use two of our statements to (...)
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  • Is this person with dementia (currently) competent to request euthanasia? A complicated and underexplored question.Scott Y. H. Kim, Dominic Mangino & Marie Nicolini - 2021 - Journal of Medical Ethics 47 (12):e41-e41.
    In euthanasia and/or assisted suicide of persons with dementia, the controversy has mostly focused on decisionally incapable persons with very advanced dementia for whom the procedure must be based on a written advance euthanasia directive. This focus on advance euthanasia directive-based EAS has been accompanied by scant attention to the issue of decision-making capacity assessment of persons with dementia who are being evaluated for concurrent request EAS. We build on a previous analysis of concurrent request EAS cases from the Netherlands, (...)
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  • Dignity, Dementia and Death.Samuel J. Kerstein - 2023 - Kantian Review 28 (2):221-237.
    According to Kant’s ethics, at least on one common interpretation, persons have a special worth or dignity that demands respect. But personhood is not coextensive with human life; for example, individuals can live in severe dementia after losing the capacities constitutive of personhood. Some philosophers, including David Velleman and Dennis Cooley, have suggested that individuals living after the loss of their personhood might offend against the Kantian dignity the individuals once possessed. Cooley has even argued that it is morally required (...)
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  • Dementia and advance directives: some empirical and normative concerns.Karin R. Jongsma, Marijke C. Kars & Johannes J. M. van Delden - 2019 - Journal of Medical Ethics 45 (2):92-94.
    The authors of the paper ‘Advance euthanasia directives: a controversial case and its ethical implications’ articulate concerns and reasons with regard to the conduct of euthanasia in persons with dementia based on advance directives. While we agree on the conclusion that there needs to be more attention for such directives in the preparation phase, we disagree with the reasons provided by the authors to support their conclusions. We will outline two concerns with their reasoning by drawing on empirical research and (...)
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  • Advance euthanasia directives and the Dutch prosecution.Jonathan A. Hughes - 2021 - Journal of Medical Ethics 47 (4):253-256.
    In a recent Dutch euthanasia case, a woman underwent euthanasia on the basis of an advance directive, having first been sedated without her knowledge and then restrained by members of her family while the euthanasia was administered. This article considers some implications of the criminal court’s acquittal of the doctor who performed the euthanasia. Supporters of advance euthanasia directives have welcomed the judgement as providing a clarification of the law, especially with regard to the admissibility of contextual evidence in interpreting (...)
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  • Health care providers’ ethical perspectives on waiver of final consent for Medical Assistance in Dying (MAiD): a qualitative study.Dianne Godkin, Lisa Cranley, Elizabeth Peter & Caroline Variath - 2022 - BMC Medical Ethics 23 (1):1-14.
    BackgroundWith the enactment of Bill C-7 in Canada in March 2021, people who are eligible for medical assistance in dying (MAiD), whose death is reasonably foreseeable and are at risk of losing decision-making capacity, may enter into a written agreement with their healthcare provider to waive the final consent requirement at the time of provision. This study explored healthcare providers’ perspectives on honouring eligible patients’ request for MAiD in the absence of a contemporaneous consent following their loss of decision-making capacity. (...)
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  • Advance Directives and Discrimination against People with Dementia.Rebecca Dresser - 2018 - Hastings Center Report 48 (4):26-27.
    In the article “On Avoiding Deep Dementia,” Norman Cantor defends a position that I suspect many readers share. In my years writing and speaking on advance directives and dementia, I've found that most people support one of two positions. They are convinced either that advance choices should control the treatment dementia patients receive or that the welfare of a person with dementia should sometimes take priority over earlier choices. As Cantor points out, I support the second position.I agree with several (...)
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  • Extending Medical Aid in Dying to Incompetent Patients: A Qualitative Descriptive Study of the Attitudes of People Living with Alzheimer’s Disease in Quebec.Vincent Thériault, Diane Guay & Gina Bravo - 2021 - Canadian Journal of Bioethics / Revue canadienne de bioéthique 4 (2).
    Background: In Quebec, medical aid in dying is legal under certain conditions. Access is currently restricted to patients who are able to consent at the time of the act, which excludes most people with dementia at an advanced stage. However, recent legislative and political developments have opened the door to an extension of the legislation that could give them access to MAiD. Our study aimed to explore the attitudes of people with early-stage dementia toward MAiD should it become accessible to (...)
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  • Advanced Requests for MAID: Are They Compatible with Canadian Medical Practice?James Mellett, Cheryl Mack & Brendan Leier - 2021 - Canadian Journal of Bioethics / Revue canadienne de bioéthique 4 (2).
    The recent passing of Bill C-7 has placed Advance Requests for MAID on Canada’s legislative agenda. We discuss how ARMs may create ethical and practical challenges for Canadian medical practice.
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