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  1. (1 other version)Qualitative study on custodianship of human biological material and data stored in biobanks.Michiel Verlinden, Herman Nys, Nadine Ectors & Isabelle Huys - 2016 - BMC Medical Ethics 17 (1):1-10.
    BackgroundBalancing the rights and obligations of custodians and applicants in relation to access to biobanks is of utmost importance to guarantee trust and confidence. This study aimed to reveal which issues divide different stakeholders in an attempt to determine the rights and/or obligations held on human biological materials and data.MethodsTwenty-eight informants in the Benelux and Scandinavia were interviewed in order to capture the perspectives of experts and stakeholders in relation to the rights and obligations held by custodians and applicants with (...)
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  • Filling China’s Gaps. Viral Banks and Bird Collections as Museums for Pandemics.Frédéric Keck - 2023 - Centaurus 65 (2):313-335.
    Two different kinds of collections have been used to anticipate influenza pandemics: viral strains and bird specimens. These collections have been organized in museums and data banks to fill the gaps when specimens were decaying or when viral strains were missing. This article asks how collecting practices changed when such collections integrated specimens from China, considered a reservoir of influenza viruses and bird species, following a recurrent critical trope that Chinese specimens were missing. The article shows that techniques for hunting (...)
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  • The reconfiguration of biobanks in Europe under the BBMRI-ERIC framework: towards global sharing nodes?Miquel Domènech & Violeta Argudo-Portal - 2020 - Life Sciences, Society and Policy 16 (1):1-15.
    Freezers with biospecimen deposits became biobanks and later were networked at the pan-European level in 2013 under the Biobanking and BioMolecular Resources Research Infrastructure—European Research Infrastructure Consortium (BBMRI-ERIC). Drawing on document analysis about the BBMRI-ERIC and multi-sited fieldwork with biobankers in Spain from a science and technology studies approach, we explore what biobanks are expected to do and become under the BBMRI-ERIC framework, and how infrastructural transitions promote particular transformations in biobanking practices. The primary purpose of biobanks in Europe is (...)
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