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  1. The ethical implications of verbal autopsy: responding to emotional and moral distress.Sassy Molyneux, Marylene Wamukoya, Amek Nyaguara, Vicki Marsh & Alex Hinga - 2021 - BMC Medical Ethics 22 (1):1-16.
    BackgroundVerbal autopsy is a pragmatic approach for generating cause-of-death data in contexts without well-functioning civil registration and vital statistics systems. It has primarily been conducted in health and demographic surveillance systems (HDSS) in Africa and Asia. Although significant resources have been invested to develop the technical aspects of verbal autopsy, ethical issues have received little attention. We explored the benefits and burdens of verbal autopsy in HDSS settings and identified potential strategies to respond to the ethical issues identified.MethodsThis research was (...)
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  • How Do Street-Level Research Workers Think About the Ethics of Doing Research “On the Ground” With Marginalized Target Populations?Kenneth A. Richman, Leslie B. Alexander & Gala True - 2015 - AJOB Empirical Bioethics 6 (2):1-11.
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  • Enhancing quality and integrity in biomedical research in Africa: an international call for greater focus, investment and standardisation in capacity strengthening for frontline staff.Francis Kombe - 2015 - BMC Medical Ethics 16 (1):1-5.
    The integrity of biomedical research depends heavily on the quality of research data collected. In turn, data quality depends on processes of data collection, a task undertaken by frontline research staff in many research programmes in Africa and elsewhere. These frontline research staff often have additional responsibilities including translating and communicating research in local languages, seeking informed consent for study participation and maintaining supportive relationships between research institutions and study participants and wider communities. The level of skills that fieldworkers need (...)
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  • “Not just dogs, but rabid dogs”: tensions and conflicts amongst research volunteers in Malawi.Mackwellings Phiri, Kate Gooding, Deborah Nyirenda, Rodrick Sambakunsi, Moses Kelly Kumwenda & Nicola Desmond - 2018 - Global Bioethics 29 (1):65-80.
    ABSTRACTBuilding trust between researchers and communities involved in research is one goal of community engagement. This paper examines the implications of community engagement for trust within communities, including trust among community volunteers who assist with research and between these volunteers and other community members. We describe the experiences of two groups of community volunteers recruited as part of an HIV and TB intervention trial in Malawi: cluster representatives, recruited both to act as key informants for TB suspects and mortality reporting (...)
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