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  1. Currents in Contemporary Ethics.Ellen Wright Clayton - 2010 - Journal of Law, Medicine and Ethics 38 (3):697-700.
    Parents, providers, policy makers, and the public need to talk about the implications of advances in genomic technologies for state run newborn metabolic screening programs. Technologies, such as highly multiplex testing and whole genome sequencing, are raising old issues with new urgency and are posing new challenges that threaten to overwhelm newborn screening programs.Newborn screening programs in their current form were born in the late 1960s. Robert Guthrie developed a screening test for phenylketonuria that could be performed on blood spots (...)
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  • The Sad Story of Newborn Screening for Krabbe: The Need for Good Governance.Fiona Alice Miller - 2013 - Public Health Ethics 6 (1):123-126.
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  • Newborn Screening for Krabbe Disease: What Illinois Can Learn from New York.Lainie Friedman Ross - 2013 - Public Health Ethics 6 (1):119-123.
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  • Informed Consent Should Be a Required Element for Newborn Screening, Even for Disorders with High Benefit-Risk Ratios.Norman Fost - 2016 - Journal of Law, Medicine and Ethics 44 (2):241-255.
    Over-enthusiastic newborn screening has often caused substantial harm and has been imposed on the public without adequate information on benefits and risks and without parental consent. This problem will become worse when genomic screening is implemented. For the past 40 years, there has been broad agreement about the criteria for ethically responsible screening, but the criteria have been systematically ignored by policy makers and practitioners. Claims of high benefit and low risk are common, but they require precise definition and documentation, (...)
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  • Two faces of patient advocacy: the current controversy in newborn screening.Cosby G. Arnold - 2014 - Journal of Medical Ethics 40 (8):558-562.
    Newborn screening programmes began in the 1960s, have traditionally been conducted without parental permission and have grown dramatically in the last decade. Whether these programmes serve patients’ best interests has recently become a point of controversy. Privacy advocates, concerned that newborn screening infringes upon individual liberties, are demanding fundamental changes to these programmes. These include parental permission and limiting the research on the blood samples obtained, an agenda at odds with the viewpoints of newborn screening advocates. This essay presents the (...)
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