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  1. Beyond translations, perspectives for researchers to consider to enhance comprehension during consent processes for health research in sub-saharan Africa: a scoping review.Michael Parker, Ann Strode, Janet Seeley & Nkosi Busisiwe - 2023 - BMC Medical Ethics 24 (1):1-16.
    BackgroundLiterature on issues relating to comprehension during the process of obtaining informed consent (IC) has largely focused on the challenges potential participants can face in understanding the IC documents, and the strategies used to enhance comprehension of those documents. In this review, we set out to describe the factors that have an impact on comprehension and the strategies used to enhance the IC process in sub-Saharan African countries.MethodsFrom November 2021 to January 2022, we conducted a literature search using a PRISMA (...)
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  • Ethical codes in the Arab region: comparisons and differences.B. Khoury & L. Akoury-Dirani - 2023 - Ethics and Behavior 33 (3):193-204.
    Within the professional practice of psychology the code of ethics characterizes what is morally right or wrong, by means of a set of principles, values, and standards of conduct. While there are numerous international mental health organizations that incorporate ethical guidelines such as the APA and EFPA; these codes still fall short in providing guidelines for psychologists working in non-western cultures, especially when there are no universally adopted and valid cross-cultural ethics codes. This paper explores various challenges psychologists in the (...)
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  • Reflections of methodological and ethical challenges in conducting research during COVID-19 involving resettled refugee youth in Canada.Zoha Salam, Elysee Nouvet & Lisa Schwartz - 2022 - Journal of Medical Ethics 48 (10):769-773.
    Research involving migrant youth involves navigating and negotiating complex challenges in order to uphold their rights and dignity, but also all while maintaining scientific rigour. COVID-19 has changed the global landscape within many domains and has increasingly highlighted inequities that exist. With restrictions focusing on maintaining physical distancing set in place to curb the spread of the virus, conducting in-person research becomes complicated. This article reflects on the ethical and methodological challenges encountered when conducting qualitative research during the pandemic with (...)
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  • Challenges to obtaining parental permission for child participation in a school-based waterpipe tobacco smoking prevention intervention in Qatar.Rima T. Nakkash, Ahmad Al Mulla, Lena Torossian, Roubina Karhily, Lama Shuayb, Ziyad R. Mahfoud, Ibrahim Janahi, Al A. Al Ansari & Rema A. Afifi - 2014 - BMC Medical Ethics 15 (1):70.
    Involving children in research studies requires obtaining parental permission. A school-based intervention to delay/prevent waterpipe use for 7th and 8th graders in Qatar was developed, and parental permission requested. Fifty three percent (2308/4314) of the parents returned permission forms; of those 19.5% of the total (840/4314) granted permission. This paper describes the challenges to obtaining parental permission. No research to date has described such challenges in the Arab world.
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  • Challenges to obtaining parental permission for child participation in a school-based waterpipe tobacco smoking prevention intervention in Qatar.Rima T. Nakkash, Ahmad Al Mulla, Lena Torossian, Roubina Karhily, Lama Shuayb, Ziyad R. Mahfoud, Ibrahim Janahi, Al Anoud Al Ansari & Rema A. Afifi - 2014 - BMC Medical Ethics 15 (1).
    BackgroundInvolving children in research studies requires obtaining parental permission. A school-based intervention to delay/prevent waterpipe use for 7th and 8th graders in Qatar was developed, and parental permission requested. Fifty three percent of the parents returned permission forms; of those 19.5% of the total granted permission. This paper describes the challenges to obtaining parental permission. No research to date has described such challenges in the Arab world.MethodsA random sample of 40 schools in Doha, Qatar was selected for inclusion in the (...)
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  • Comprehension of a simplified assent form in a vaccine trial for adolescents: Table 1.Sonia Lee, Bill G. Kapogiannis, Patricia M. Flynn, Bret J. Rudy, James Bethel, Sushma Ahmad, Diane Tucker, Sue Ellen Abdalian, Dannie Hoffman, Craig M. Wilson & Coleen K. Cunningham - 2013 - Journal of Medical Ethics 39 (6):410-412.
    Introduction Future HIV vaccine efficacy trials with adolescents will need to ensure that participants comprehend study concepts in order to confer true informed assent. A Hepatitis B vaccine trial with adolescents offers valuable opportunity to test youth understanding of vaccine trial requirements in general. Methods Youth reviewed a simplified assent form with study investigators and then completed a comprehension questionnaire. Once enrolled, all youth were tested for HIV and confirmed to be HIV-negative. Results 123 youth completed the questionnaire (mean age=15 (...)
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  • Procedures of recruiting, obtaining informed consent, and compensating research participants in Qatar: findings from a qualitative investigation.Amal Killawi, Amal Khidir, Maha Elnashar, Huda Abdelrahim, Maya Hammoud, Heather Elliott, Michelle Thurston, Humna Asad, Abdul Latif Al-Khal & Michael D. Fetters - 2014 - BMC Medical Ethics 15 (1):9.
    Very few researchers have reported on procedures of recruiting, obtaining informed consent, and compensating participants in health research in the Arabian Gulf Region. Empirical research can inform the debate about whether to adjust these procedures for culturally diverse settings. Our objective was to delineate procedures related to recruiting, obtaining informed consent, and compensating health research participants in the extremely high-density multicultural setting of Qatar.
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