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  1. Biobanks for non-clinical purposes and the new law on forensic biobanks: does the Italian context protect the rights of minors?Pamela Tozzo, Renzo Pegoraro & Luciana Caenazzo - 2010 - Journal of Medical Ethics 36 (12):775-778.
    Biobanks are an important resource for medical research. Genetic research on biological material from minors can yield valuable information that can improve our understanding of genetic–environmental interactions and the genesis and development of early onset genetic disorders. The major ethical concerns relating to biobanks concern consent, privacy, confidentiality, commercialisation, and the right to know or not to know. However, research on paediatric data raises specific governance and ethical questions with regard to consent and privacy. We have considered the Italian normative (...)
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  • Voluntary Participation in Forensic DNA Databases: Altruism, Resistance, and Stigma.Susana Silva & Helena Machado - 2016 - Science, Technology, and Human Values 41 (2):322-343.
    The public’s understanding of forensic DNA databases remains undertheorized and few empirical studies have been produced. This article aims to address this omission by exploring the answers to an open-ended question taken from an online questionnaire regarding the reasons for individuals’ voluntarily accepting or refusing to allow their DNA profile to be included in the Portuguese forensic DNA database. The analysis is undertaken from the perspective of biological citizenship and the simultaneous empowering and disempowering effects of surveillance. The results indicate (...)
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  • Public Perspectives on Risks and Benefits of Forensic DNA Databases: An Approach to the Influence of Professional Group, Education, and Age.Susana Silva & Helena Machado - 2015 - Bulletin of Science, Technology and Society 35 (1-2):16-24.
    There is scarce knowledge about the influence of the professional group, education, and age on public perspectives on the risks and benefits of forensic DNA databases. Based on data collected through an online questionnaire applied to 628 individuals in Portugal, this research fills that gap. More than three quarters of the respondents believed that the Portuguese forensic DNA database can help fight crime more efficiently and develop a swifter and more accurate justice, whereas only approximately half thought that it could (...)
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  • Public participation in genetic databases: crossing the boundaries between biobanks and forensic DNA databases through the principle of solidarity.Helena Machado & Susana Silva - 2015 - Journal of Medical Ethics 41 (10):820-824.
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  • Retaining the Genetic Profile of Innocent People: A Difficult Balance Between Respecting the Individual's Privacy and Public Security.Luciana Caenazzo & Pamela Tozzo - 2013 - Synesis: A Journal of Science, Technology, Ethics, and Policy 4 (1).
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