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  1. Who’s afraid of genetic tests?: An assessment of Singapore’s public attitudes and changes in attitudes after taking a genetic test.Ian McGonigle, Hie Lim Kim, Manoj Vimal, Shreshtha Jolly & Ross Cheung - 2022 - BMC Medical Ethics 23 (1):1-8.
    BackgroundAs a consequence of precision medicine initiatives, genomic technologies have rapidly spread around the world, raising questions about genetic privacy and the ethics of data sharing. Previous scholarship in bioethics and science and technology studies has made clear that different nations have varying expectations about trust, transparency, and public reason in relation to emerging technologies and their governance. The key aims of this article are to assess genetic literacy, perceptions of genetic testing, privacy concerns, and governing norms amongst the Singapore (...)
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  • Cross-jurisdictional Data Transfer in Health Research: Stakeholder Perceptions on the Role of Law.Hui Yun Chan, Hui Jin Toh & Tamra Lysaght - forthcoming - Asian Bioethics Review:1-20.
    Large data-intensive health research programmes benefit from collaboration amongst researchers who may be located in different institutions and international contexts. However, complexities in navigating privacy frameworks and data protection laws across various jurisdictions pose significant challenges to researchers seeking to share or transfer data outside of institutional boundaries. Research on the awareness of data protection and privacy laws amongst stakeholders is limited. Our qualitative study, drawn from a larger project in Singapore, revealed insights into stakeholders’ perceptions of the role of (...)
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