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  1. Towards including end-users in the design of prosthetic hands: Ethical analysis of survey of Australians with upper-limb difference.Mary Jean Walker, Eliza Goddard, Benjamin Stephens-Fripp & Gursel Alici - 2019 - Science and Engineering Ethics (2):1-27.
    Advances in prosthetic design should benefit people with limb difference. But empirical evidence demonstrates a lack of uptake of prosthetics among those with limb difference, including of advanced designs. Non-use is often framed as a problem of prosthetic design or a user’s response to prosthetics. Few studies investigate user experience and preferences, and those that do tend to address satisfaction or dissatisfaction with functional aspects of particular designs. This results in limited data to improve designs and, we argue, this is (...)
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  • Three Things Clinicians Should Know About Disability.Joel Michael Reynolds - 2018 - AMA Journal of Ethics 12 (20):E1181-1187.
    The historical relationship between health care professionals and people with disabilities is fraught, a fact all the more troubling in light of the distinctive roles clinicians play in both establishing and responding to that which is considered normal or abnormal by society at large. Those who wish to improve their clinical practice might struggle, however, to keep up with developments across numerous disability communities as well as the ever-growing body of disability studies scholarship. To assist with this goal, I offer (...)
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  • Is it ever morally permissible to select for deafness in one’s child?Jacqueline Mae Wallis - 2020 - Medicine, Health Care and Philosophy 23 (1):3-15.
    As reproductive genetic technologies advance, families have more options to choose what sort of child they want to have. Using preimplantation genetic diagnosis (PGD), for example, allows parents to evaluate several existing embryos before selecting which to implant via in vitro fertilization (IVF). One of the traits PGD can identify is genetic deafness, and hearing embryos are now preferentially selected around the globe using this method. Importantly, some Deaf families desire a deaf child, and PGD–IVF is also an option for (...)
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  • Towards Including End-Users in the Design of Prosthetic Hands: Ethical Analysis of a Survey of Australians with Upper-Limb Difference.Mary Jean Walker, Eliza Goddard, Benjamin Stephens-Fripp & Gursel Alici - 2020 - Science and Engineering Ethics 26 (2):981-1007.
    Advances in prosthetic design should benefit people with limb difference. But empirical evidence demonstrates a lack of uptake of prosthetics among those with limb difference, including of advanced designs. Non-use is often framed as a problem of prosthetic design or a user’s response to prosthetics. Few studies investigate user experience and preferences, and those that do tend to address satisfaction or dissatisfaction with functional aspects of particular designs. This results in limited data to improve designs and, we argue, this is (...)
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  • The invention of disability.Melania Moscoso Pérez - 2022 - Alter - European Journal of Disability Research / Revue Européenne de Recherche Sur le Handicap 16-2 (16-2):31-42.
    L’anthropologue Roy Wagner a défini l’invention comme une manière de contester l’hypothèse selon laquelle la vie ordinaire est en grande partie déterminée. Dans ce texte, nous explorons la notion de handicap comme notion ordinaire et comme notion conventionnelle, en mettant en évidence le contraste avec la notion de normativité vitale proposée par Georges Canguilhem dans la section II du Normal et du pathologique, qui se rapprocherait de la notion d’invention que Wagner développe. Dans cette seconde approche, le concept de normativité (...)
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