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  1. Bioethics: No Method—No Discipline?Bjørn Hofmann - forthcoming - Cambridge Quarterly of Healthcare Ethics:1-10.
    This article raises the question of whether bioethics qualifies as a discipline. According to a standard definition of discipline as “a field of study following specific and well-established methodological rules” bioethics is not a specific discipline as there are no explicit “well-established methodological rules.” The article investigates whether the methodological rules can be implicit, and whether bioethics can follow specific methodological rules within subdisciplines or for specific tasks. As this does not appear to be the case, the article examines whether (...)
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  • Ethical preparedness in genomic medicine: how NHS clinical scientists navigate ethical issues.Kate Sahan, Kate Lyle, Helena Carley, Nina Hallowell, Michael J. Parker & Anneke M. Lucassen - 2024 - Journal of Medical Ethics 50 (8):517-522.
    Much has been published about the ethical issues encountered by clinicians in genetics/genomics, but those experienced by clinical laboratory scientists are less well described. Clinical laboratory scientists now frequently face navigating ethical problems in their work, but how they should be best supported to do this is underexplored. This lack of attention is also reflected in the ethics tools available to clinical laboratory scientists such as guidance and deliberative ethics forums, developed primarily to manage issues arising within the clinic.We explore (...)
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  • ‘Is this knowledge mine and nobody else's? I don't feel that.’ Patient views about consent, confidentiality and information-sharing in genetic medicine: Table 1.Sandi Dheensa, Angela Fenwick & Anneke Lucassen - 2016 - Journal of Medical Ethics 42 (3):174-179.
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  • Report on an audit of two decades’ activities of a clinical ethics committee: the Newcastle upon Tyne Hospitals NHS Foundation Trust Clinical Ethics Advisory Group (CEAG).Raj K. Mohindra & Stephen J. Louw - forthcoming - Journal of Medical Ethics.
    Background‘The Clinical Ethics Advisory Group’ (CEAG) is the clinical ethics support body for Newcastle upon Tyne Hospitals National Health Service Foundation Trust. A significant change in CEAG’s way of working occurred over the past 5 years as a result of Court decisions, increasing public expectations and an increase in CEAG’s paediatric case flow.PurposeReview historical data: (a) as a useful benchmark to look for the early impact of significant service changes and (b) to seek possible reference (‘sentinel’) cases for use with (...)
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  • (1 other version)CURA—An Ethics Support Instrument for Nurses in Palliative Care. Feasibility and First Perceived Outcomes.Malene Vera van Schaik, H. Roeline Pasman, Guy Widdershoven, Bert Molewijk & Suzanne Metselaar - 2021 - HEC Forum 35 (2):1-21.
    Evaluating the feasibility and first perceived outcomes of a newly developed clinical ethics support instrument called CURA. This instrument is tailored to the needs of nurses that provide palliative care and is intended to foster both moral competences and moral resilience. This study is a descriptive cross-sectional evaluation study. Respondents consisted of nurses and nurse assistants (n = 97) following a continuing education program (course participants) and colleagues of these course participants (n = 124). Two questionnaires with five-point Likert scales (...)
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