This article is based on qualitative research conducted in Delhi between May 2019 and October 2019 with children from the Salaam Baalak Trust (SBT) as part of a PhD. Data were collected from 30 children in focus group discussions using participatory methods, followed by semi-structured interviews. As the research was conducted among a vulnerable population (migrant street children), every effort was made to conduct the study ethically, including obtaining informed consent and upholding confidentially and anonymity. Careful consideration was given as (...) to how to tackle sensitive issues should they arise during data collection. The children agreed that the interim findings of the research would be shared with them through SBT. In addition, the researcher considered her position in the research and applied a reflexive approach to address ethical issues as they emerged. This article sets out the ethical principles applied in this research and the process followed to uphold each principle during data collection, taking into account the vulnerability of the group being studied and the context of the study (India). (shrink)

Background There are legal protections for nurse researchers at public universities who employ community-based participatory research (CBPR) in research about social or health inequities. Dissemination of CBPR research data by researchers or participants may divulge unjust laws and create an imperative for university involvement. Research Question What are United States-based legal dissemination protections for CBPR health equity nurse researchers? Research Design Three case examples employing CBPR are examined: 1) a mixed methods study with participants reporting illegal discrimination in a municipal (...) initiative about capacity building in community-based organizations serving children; 2) a visual methods study exposing potential clean air law violations in environmental justice research; and 3) a study examining workload violations and illegal discrimination among hotel workers. Participants and Research Context The cases involved participants from protected social class backgrounds. The research is described with respect to: background, funding, research purpose, and research team; research participants’ power and legal vulnerability; dissemination of relevant research information balancing vulnerability and power; research dissemination issues; potential legal issues involved; and laws researchers may use. Ethical Considerations IRB approval was obtained for the studies. Using a social justice ethical framework, studies highlight actual or potential legal aspects of data dissemination in the context of gathering data about injustice. Findings Legal protections for research data dissemination, whistleblower protection, research advancement protection, anti-harassment protection, false claims, defamation, and visual data liabilities are described. Conclusion Knowledge of legal research data dissemination protections is an essential competency for nurse researchers invested in uplifting social justice. (shrink)