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  1. Ethical implications of blockchain technology in biomedical research.Giovanni Rubeis - forthcoming - Ethik in der Medizin:1-14.
    Definition of the problem Biomedical research based on big data offers immense benefits. Large multisite research that integrates large amounts of personal health data, especially genomic and genetic data, might contribute to a more personalized medicine. This type of research requires the transfer and storage of highly sensitive data, which raises the question of how to protect data subjects against data harm, such as privacy breach, disempowerment, disenfranchisement, and exploitation. As a result, there is a trade-off between reaping the benefits (...)
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  • Safeguarding Users of Consumer Mental Health Apps in Research and Product Improvement Studies: an Interview Study.Kamiel Verbeke, Charu Jain, Ambra Shpendi & Pascal Borry - 2024 - Neuroethics 17 (1):1-20.
    Mental health-related data generated by app users during the routine use of Consumer Mental Health Apps (CMHAs) are being increasingly leveraged for research and product improvement studies. However, it remains unclear which ethical safeguards and practices should be implemented by researchers and app developers to protect users during these studies, and concerns have been raised over their current implementation in CMHAs. To better understand which ethical safeguards and practices are implemented, why and how, 17 app developers and researchers were interviewed (...)
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